Sleeping !!: My daughter who has Downs Syndrome... - Thyroid UK

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Sleeping !!

witch profile image
6 Replies

My daughter who has Downs Syndrome had total thyroidectomy in 2008 due to Graves disease - rare i know!!

She is now sleeping an awful lot and is extremely tired and emotional all of the time.

Just had bloods done and results are:

TSH 0.11

T3 4.8

T4 22.3.

She takes Levothyroxine 150mcg for 5 days and 175mcg for 2 days.

Any ideas why she is so tired - any help woukd be gratefully received. Thanks.

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witch
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6 Replies
greygoose profile image
greygoose

I'm afraid we need the ranges, please. Results without ranges are meaningless. But, it looks rather like she has a conversion problem.

witch profile image
witch in reply togreygoose

Hi thanks for replying - could I ask you which ranges you mean please?

greygoose profile image
greygoose in reply towitch

TSH 0.11 (range)

T3 4.8 (range)

T4 22.3. (range)

The ranges should be in brackets after the result. A typical FT4 range is (12 - 22). But, all labs have their own ranges, so you can only interpret a result using the range used by the lab where the test was done. :)

witch profile image
witch in reply togreygoose

Hi thanks. I will ask Doctors on Monday and let you know. 🙂

witch profile image
witch in reply towitch

Hi, just found an old serum sheet and the lab works on TSH: (0.30 - 4.50) Serum free T3 (3.1 - 6.8). Serum free T4 (11.0 - 22.0).

Any help is greatly appreciated. Thanks

jimh111 profile image
jimh111

The blood results look 'good' assuming typical reference intervals. Many patients still have problems with good blood hormone levels. It would depend upon how well she can express how she feels but I would be inclined to ask her doctor to trial her on a little liothyronine which is a form of 'T3' the active hormone. I would not increase her levothyroxine as high fT4 levels tend to be counterproductive. I think she should have specialist care from a paediatric endocrinologist. She has enough to cope with without potential hypothyroidism. Perhaps they could do some tests such as measuring her ankle reflex time as this is a good indicator of thyroid status.

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