Vitamin D levels for Hypo sufferers: Hi everyone... - Thyroid UK

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Vitamin D levels for Hypo sufferers


Hi everyone,

About four years ago, I was diagnosed with severe Vitamin D deficiency after suffering mobility problems for years and a previous diagnoses of fibromyalgia. My gp prescribed 800iu vitamin D3 capsules per day.

I quickly found that I feel better on more Vitamin D than that and have been taking considerably more through the winter months. My last blood test a couple of weeks ago was 110 ( >75 ). I have really been working on raising this level.

I had a phone call from my gp surgery this morning. My doctor has decided that I should no longer take vitamin D3 tablets. I should instead, "enjoy a vitamin D rich diet". I should have received a letter from my doctor informing me of vitamin D rich foods - which I have not received! I will no longer get a prescription for vitamin D3.

I have been a vegetarian for over forty years, which makes it impossible for me to follow a " vitamin D rich diet", which was what caused my problems in the first place.

On stating this, I was told to eat lots of nuts and mushrooms. I really can't stand mushrooms and I can only eat so many nuts! Hence the tablets.

As a hypo sufferer, what should my vitamin D level be? I really don't want to return to my mobility problems of a few years ago. Is it possible to take too much vitamin D?

Thanks for your help.

4 Replies

Your level is now good. Take a 1000 iu's to maintain levels otherwise they will quickly drop. What a shame your GP does not understand that being Hypo affects absorption of vitamins & minerals 😎

How is your B12 & Folate ?

What is your current VitD dose ? Magnesium & VitK2-MK7 should also be taken ....

Are you taking any other meds ?

dizzy864 in reply to Marz

Hi, Thanks for your reply. I've been taking about 1500iu of vitamin D3 per day through the winter months. In the sun I take just the 800 that I was prescribed. I also take a 500iu neurovits tablet a day. This contains vitamin B12, Folic acid, B1 and B6.

My folate level was within range a couple of years ago, but quite low when it was last tested. I did try taking iron tablets but I can't tolerate even gentle iron. After a couple of days I become really unwell so I just take the odd tablet now and again. I've never had my magnesium or K2 checked. I don't know what MK7 means.

I was thinking about taking a thyroid support tablet but it's difficult to find a vege friendly one. I'm not sure what exactly they contain and if it would be helpful.

SeasideSusieAdministrator in reply to dizzy864

Forget the thyroid support tablet, it very likely contains Iodine and unless tested and found to be deficient we shouldn't take it. Much better to concentrate on Vit D, B12, Folate and Ferritin and supplement those where necessary. And if considering a multivitamin then don't bother with those either, they never contain enough of anything to help and generally use the cheapest and wrong form of active ingredients.

As for your Vit D, just buy your own, they're cheap enough. Look at Doctor's Best, a nice small softgel containing only D3 and extra virgin olive oil, no unnecessary ingredients.

There are important cofactors needed when taking D3. D3 aids absorption of calcium from food and Vit K2-mk7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissue where it can be deposited and cause problems. Magnesium helps D3 to work.

A good K2-mk7 is Healthy Origins.

Magnesium you would have to check to see which form would suit you best

For iron supplement look at Mega Foods Blood Builder (it's a vegan product) and check out the list of iron rich foods here

Hi, Thanks for the info. I'll look into it. I know I have to be careful with magnesium - I saw the "magnesium man" a few years ago. If you have not heard of him, he was a french man employed as an endo in various parts of England. He believed that the only cause of fibromyalgia was a magnesium deficiency. I was sold magnesium supplements from somewhere he put me in touch with. Turned out to be his friend!

He tried to sell me and all of his patients a tens machines for £2000. I declined but lots of patients bought the machines and then found them useless for fibromyalgia.

The magnesium really upset my stomach for the three months I took it.

It cost me a bit of money - I was in a lot of pain and desperate - it cost other people a lot more. A couple of years after I saw him, he was struck off the medical register for malpractice. I was probably a bit naive. But in my defense, I was referred to him on the NHS by my gp.

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