Although I've had Hashimoto's for a number of years I'm new to TED and seeking some advice/ treatment ideas/ peace of mind.
I had no idea there was anything wrong with my eyes, but I went into the eye hospital about two weeks ago because I accidentally splashed a chemical in my right eye. First two doctors I saw said 'eye is not damaged'. However a week later the eye was in much agony I went back. This time, I saw a different doctor who said I had TED and refereed me for an MRI scan.
The scan was supposed to be yesterday but I stupidly told them about a bit of earring that might still be in my ear and they cancelled it! I have to wait now for x-ray (to see if there is metal in there) and then another MRI appointment.
In the mean time I am scared I am letting it get worse. Since my first appointment I have noticed my right eye is bulging more than the left (see picture, remember my right eye is the one on the left in the pic, that confuses me when I look back on photos!) However, I don't think they are too noticeable currently (clearly not as no other doctor noticed).
My question therefore is, how do people get really bad before any doctor notices and/or people seek help because their eyes are noticeably bulging? Does the disease progress really quickly or does treatment just not work? (i.e by next week could they be properly bulging?)
Lastly, are there any remedies I can try for now while I wait for the scan/ results and conventional treatment?
I am hoping I can get that right eye to go like the left and avoid an operation (do they look like they need operating on? Why do some people need operating on and some don't?
Sorry if my questions seem completely dumb, I am so in the dark about all this. I didn't even know people with UAT could get TED. I thought I was struggling with getting my T4/TSH levels right then the next minute I am facing possibly surgery etc.