Frankly, the state of levo research is embarassing - Thyroid UK

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Frankly, the state of levo research is embarassing

Danielj1 profile image
14 Replies

verywell.com/hypothyroidism...

It does not take rocket science to work out that T4 does not at times convert well to T3.

Why can’t the entire industry put their heads around how clients improve T3 conversion- magnesium oil, zinc , black cumin seed oil and many others - why is there a wall of resistance to questioning the status quo

No need to respond as we all know the answers on this thread :)

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Danielj1
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Kell-E profile image
Kell-E

Who would pay for the study on improving conversion? The Synthroid people have everything just where they want it. End of studies...

Kathyhandis profile image
Kathyhandis

A charity could fund research but who is going to donate to it besides us? Nobody cares about us but us.

Justiina profile image
Justiina in reply to Kathyhandis

CfS study is also lagging behind because of funding. There are several researchers that offered to do it but FDA ignores them. So it seems to be more about politics than anything else. I assume it is the same with thyroid. Help has been offered but it's rejected.

Angel_of_the_North profile image
Angel_of_the_North in reply to Kathyhandis

Charities are mostly just businesses with lower tax and perks - and many of them are "run"/sponsored by the companies with a commercial interest in the condition that the charity deals with, so ...

crimple profile image
crimple

It's all because big pharma want to protect their profits. It's in their interests to stick with TSH results only. Since a healthy thyroid produces T4 and T3 in the correct proportions I will never give in to "treat by TSH only mantra". I always check how my T4 and T3 are doing and treat according to my symptoms. I do wonder if it's T4 only regime that leads to poor conversion to T3, since the levo gives only T4 and NO T3, does the body "forget" how to deal with T3 which is what every living cell in the body requires. It would be good to see how long it takes on a T4 only regime before folks become sick again due to low T3. It will be an individual thing, as we are not machines. I think for me the process began when I got Hashi's about 5 years ago

Baobabs profile image
Baobabs in reply to crimple

Shocking, just shocking. Profit before health. It's not rocket science to see why conversion is such a very complex issue. What if T3 meds were cheaper than T4?

Baobabs profile image
Baobabs

Hello Danielj1. Perhaps I am just not getting this piece of research but what are they comparing the sampled group to? Those on some other thyroid treatment or just those taking nothing at all?

diogenes profile image
diogenesRemembering

This production from the US says it all. It simply discusses thyroid diagnosis/treatment problems from a totally US perspective. No other work is even mentioned, and I don't think the author Mary Shomon is even aware of it. This is the perennial problem in medicine, whether by formal practice or nonprofessional commentators. The US is always inward looking and "exceptional", as if only its professional and scientists have discovered things. It really does make me wonder at this intellectual parochiality (and US purlonging of ideas by repetition and publication priority claiming if it suits). And as the medics in the UK tend to tail along behind the US, no wonder that there is a sort of parallel universe where the US/UK/Australian/ perhaps NZ collective ideas are contrasted with the European/Japanese take on the problem. I don't know about South America but I think it tends to join the US group think.There is no meeting of minds globally. And therefore medico/scientific progress is hobbled. And those who think differently from the group can be isolated more easily and ignored.

Danielj1 profile image
Danielj1 in reply to diogenes

100% agreed.

I would add that one online alternative medic has been the source of probably 80% of all the ideas that is dramatically improving my condition. I have been invited to a US seminar in the next couple of weeks and if there is any way I could have got the time off work I would have gone.

There seems too big a gap between us alternative medics and U.K. alternative medics.

People may raise a wry smile over folks like medical medium but he is at least reaching out to everyone - tell me any U.K. experts who are doing the same ?

GentleOrange profile image
GentleOrange

Hi, something I'm really not up on is conversion. All I know is I cannot take T4 without eventually feeling like I will fall into a coma! I heard that zinc and selenium are good with helping conversion, but I don't suppose you have a link to the other things you mentioned? My GP is pushing for me to try T4 again and I can't afford to keep buying T3 online, so I am willing to take any and all things that may help!

Danielj1 profile image
Danielj1 in reply to GentleOrange

The great news is that there are ways of transforming levels of conversion - I am fully aware of the view that some /all of these ideas will work depending on everyone’s individual genetics.

So here is my list - take it all with a pinch of salt, but I have proven from blood tests that even when stuck on the same level of levo T3 has gone nicely up to a level I think is OK for me.

No PUFA, eggs

Very low gluten,dairy

Magnesium oil (loads of - but within sensible RDA)

Exercise

Orange juice / salted

Lots of fruit and fresh veg (spuds and carrots and mushrooms as 3 examples)

Hydrolysed beef liver capsules

Plenty of water

Plenty of black coffee - I have now cut back and am increasingly replacing with red rooibos tea

The above is my non negotiable list - the supplements list has changed a lot over the past year and has included selenium, zinc, b vits and D.

I am increasingly finding that as magnesium levels balance out and digestion improves that need for other supplements dials back. I have found black cumin seed oils very beneficial too, although there is not a lot of research so not a cast iron recommendation.

After 12 long months I am close to the end of my “fix it “journey, did 3 hard aerobic running sessions and in a row and feel great and this says I have got enough of my life back as to not make any difference.

This is all possible, but very hard work - so if I can encourage you you can do with T4 alone. Good luck!

Danielj1 profile image
Danielj1 in reply to Danielj1

wholefoodsmagazine.com/colu...

One example of mags interaction with other supplements :)

Danielj1 profile image
Danielj1 in reply to Danielj1

And there have been loads of blind alleys along the way I have tried out and discarded ....but I won’t trouble you with those ...

GentleOrange profile image
GentleOrange in reply to Danielj1

That's very helpful thank you!!

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