Thyroid UK
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I think I have hypothyroidism/Hashimotos

Hi there,

I have Ehlers Danlos 3 (connective tissue disorder) and Postural Orthostatic Tachycardia Syndrome and other undiagnosed chronic illnesses. I also have family history of thyroid problems and I have been finding myself getting sicker recently and feel it may be thyroid. My symptoms are:

•extreme fatigue

•coldness

•night sweats

•headaches

•sensitivity to light and sound

•weight gain

•dysfunctional uterine bleeding

•pelvic burning pain

•suspected ovarian cyst

•pale stools

•constipation

•mood swings

•muscle aches and pains

•tingling in hands and feet

•dizziness

Are any of these distinctive to hypothyroidism and not other illnesses and are they all symptoms of an over active thyroid ?

I am getting blood tests on Monday but worrying nothing will show up. If it doesn’t should I request a TRH stimulation test?

Also, if I do have underactive thyroid and I require treatment, will this make my PoTs (tachycardia) worse?

4 Replies
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For full evaluation you ideally need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

Essential to test antibodies and vitamins

Some of these symptoms may be low B12 - eg dizziness and pins and needles, night sweats

Pale stool - might indicate coeliac disease, gluten intolerance or low iron

Muscle aches and pains low vitamin D and or low magnesium

See if you can get full thyroid and vitamin testing from GP. Unlikely to get FT3

Low vitamins can be a problem in own right, or as result of being hypothyroid or especially autoimmune thyroid disease also called Hashimoto's

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)

Link about antibodies

thyroiduk.org.uk/tuk/about_...

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

List of hypothyroid symptoms

thyroiduk.org/tuk/about_the...

2 likes
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I have JHS, & my son suggested I have EDS. I only felt better for taking thyroid hormones, especially with regard to not being cold. :)

As SlowDragon wrote, it's important to have optimal levels of micro-nutrients, as deficiency in one is enough to throw our hormones & body out of kilter.

Good luck getting treatment!

1 like
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It certainly could be underactive thyroid and/or B12 deficiency. Thyroxine may help your POTS.

Karen

Reply

So how did the Thyroid bloodtests go ? do you have any results with ranges ?

1 like
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