Had another letter from DOH which I will be responding too as typically doesn't answer my questions. I was prescribed my Liothyronine in secondary care and it should not have been abruptly stopped. Not sure if I can add both pages here so may have to do them separately. I've been trying to find out what NICE actually say about this. So far the only paper I've found doesn't seem to class it as "unsafe or ineffective. Does anyone have anything on this please?
Yet, entirely due to costs, thousands of patients have had this essential treatment abruptly withdrawn causing great ill health and distress.
Also increased cost to NHS in other ways, such as needing B12 injections, folic acid, iron and vitamin D supplements on prescription. Referral back to consultants and increase in blood tests
There are NO formal NICE guidelines for hypothyroidism.
There are Clinical Knowledge Summaries (CKS) which were inherited by NICE from the NHS. They do not have the standing of full NICE guidelines. They do not have properly developed document management (though rather better than some other organisations).
Yes, here it is. bnf.nice.org.uk/drug/liothy... Wasn't the guidelines I was looking for but interesting it does say that side effects are only due to overdose and that we should be tested if our brand is changed.
We know that costs have always been the issue but inept GP's and even Endo's don't help either! I wonder what percentage of people failing on T3 has been down to bad management but that's not taken into consideration? Medics giving it a thumbs down can't have helped.
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