My letter to the prime Minister about Liothyronine got passed to the Department of Health. Got a reply this morning and will try and put it on here but apologies if it doesn't' work. The wording is almost exactly the same as that put out by my CCG and all wrong. There's two pages so not sure if I can add two. I've also taken my details out as not sure that's allowed on here.
[ Edited by admin to add link to second page:
Could only add one page. How can I add another?
Yes sadly "bog standard" reply many of us have had.
Particularly irritating that paragraph about Royal Physicians
You could reply enclosing Patients Association very positive appraisal and also British Thyroid Association guidelines on Liothyronine, though very annoying that their website is not functional at moment.
I will be replying because my CCG gave me copies of the papers they say they used to make the decision and all of them make allowances for the minority of us needing T3 but this has been totally overlooked. I'd heard of the Royal College of Physicians but now we have Royal College of General Practitioners. Anyone know what they say? Not even heard of them.
Stock reply by a minion - same procedure as for anything else you complainm about which is government policy. No point replying as it will only be seen by a junior civil servant
Well I have replied and if no luck will seek legal advice and then they can't turn round and say they didn't know. Not long now before the consultation results should be out.
I wrote to my MP who, to be fair to him, has done more than his predecessor, and had a reply from Professor Sir Bruce Keough KBE, MD, FRCS, FRCP, National Medical Director of NHS England. I suppose I should feel privileged or honoured! He just said a consultation was underway. My MP's caseworker ended her letter with "I trust that this response is helpful, however, please do contact me if I can be of further assistance". She helpfully omitted to include her details so I replied directly to my MP saying that it wasn't helpful (plus a bit more of an argument).
Reply from Dept. Of Health
Iron, thyroid patients and gut healthGut Health and Thyroid HormonesReply from Department of Health re email flooding of PM's email. I expect everyone has had more or less the same reply
NHS Salivary Cortisol tests at the Specialist Biochemistry department at University Hospital Southampton
