NHS England gave its decision at a board meeting this morning about whether liothyronine will be deprescribed by the NHS:
15. Of those respondents who either agreed or disagreed with the recommendations,
only 16% agree that CCGs should be advised that prescribers in primary care
should not initiate Liothyronine for any new patients.
16. The main recurring theme – particularly from patients and organisational bodies -
is that this is an effective treatment which can, in the appropriate circumstances
contribute to patient wellbeing, quality of life and condition management. The
impact on particular cohorts of patients was also highlighted - notably those who
are unable to take Levothyroxine-T4, or whose metabolic pathway is impaired in
17. The joint clinical working group therefore recommended the prescribing of
liothyronine for any new patient should be initiated by a consultant
endocrinologist in the NHS, and that de-prescribing in ‘all’ patients is not
appropriate, as there are recognised exceptions. The recommendation would
therefore be changed to advise prescribers to de-prescribe in all appropriate
Thyroid UK is not happy with the word "appropriate". They have not explained who would be "appropriate" to remain on T3. The definition of "Appropriate" is very subjective and NHS England should have gone further and explained that patients who do not do well on levothyroxine should be given a trial of T3.
The section of liothyronine (starting on page 40) is very interesting and shows that not just thyroid patient groups wanted to see liothyronine continued.
I would like to say a big THANK YOU and WELL DONE to everyone who supported our campaign and who took part in the consultation. Now is the time for patients who have been de-prescribed to go back to their GP/Endocrinologist and show them the NHS England decision and push for having it represcribed again.
Patients who are not well on levothyroxine now need to push for an endocrinologist appointment for a trial of T3!
This doesn't mean that Thyroid UK will stop campaigning as we really want T3 to be tested as routine in all patients and trials of T3 given more readily. Then, of course, there's the fight to get the price of T3 reduced!
You can read a transcript of the meeting here: england.nhs.uk/wp-content/u...