Hi just joined, I am very worried because my weight is going up. I take no thyroxine despite diagnosis in 2011 and don’t feel any different if I was taking it or not. Thank you for any advice
TSH 4.66 (0.2 - 4.2)
FT4 14.8 (12 - 22)
FT3 3.3 (3.1 - 6.8)
TPO ANTIBODY 485 (<34)
TG ANTIBODY 367.3 (<115)
Why no thyroxine ? How long were you taking it ? How much ?
B12 - Folate - Ferritin - VitD - have they been tested ? When did you have the above tests done ?
Was taking it for 7 years and I was taking 175mcg thyroxine, endo says symptoms no longer thyroid
So what are your symptoms ?
Weight gain, hard stool, tiredness, flushing, depression, tinnitus, heavy periods, puffy eyes, puffy feet, bone pain
As mentioned in my reply above - how are your levels of B12 - Folate - Ferritin -VitD ? - some of your symptoms are linked to low B12 & VitD. Thyroid hormones do not work without good levels of vitamins and minerals. You also have Hashimotos so you need to take Levo. Going gluten free could help to reduce anti-bodies. Any other medications ?
No medications
FERRITIN 61 (30 - 400)
FOLATE 4.3 (4.6 - 18.7)
VITAMIN B12 442 (190 - 900)
VITAMIN D 60.3 (50 - 75 suboptimal)
Taking 1x ferrous fumarate, 800iu D3 and having B12 injections
How long off thyroid meds when this test done?
They are all too low (except possibly the B12)
do you have vitamins from when on 175mcg to compare
8 weeks
can you add your results from when on 175mcg
TSH, FT4, FT3 plus vitamin D, folate, ferritin and B12 if you had them tested too
Results on 175mcg
TSH 1.50 (0.2 - 4.2)
FT4 19.3 (12 - 22)
FT3 3.9 (3.1 - 6.8)
Ferritin 110.3 (30 - 400)
Folate 10.1 (2.5 - 19.5)
Vitamin B12 693 (190 - 900)
Vitamin D 73
These results on 175mcg show that you are poor converter of T4 to T3
FT3 should be at least above 5 with a high FT4
You were still therefore still hypo.
Your vitamin D was still too low as well. Most on Levothyroxine need vitamin D around 100nmol
Professor Toft recent article saying, T3 may be necessary for many
rcpe.ac.uk/sites/default/fi...
You need a T3 friendly endo
Email Thyroid UK for list of recommended thyroid specialists
You will need Levothyroxine stepped back up to 175mcg, in 25mcg steps, and vitamins supplemented to improve while dose increased
But it's highly likely you will find it necessary to be strictly gluten free too
Detailed supplements advice on Low vitamins due to under medication on this post
healthunlocked.com/thyroidu...
Read as much as possible about Hashimoto's
I’m the same don’t feel any different if I do or don’t take thyroxine. And my weights gone up.
Through messages here Iv been told to get re tested and Iv started taking my tablets again. Started gym today,fingers crossed. I hope you get some resolution and welcome 😁
Your endocrinologist is a dangerous idiot to say you don't need Levothyroxine. Probably a Diabetes specialist out of their depth
your antibodies are very high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12.
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Tinnitus is likely low B12
Bone pain low vitamin D
Heavy periods are classic sign of being hypothyroid and cause low ferritin
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ask GP for coeliac blood test first
Persistent low vitamins with supplements suggests coeliac disease or gluten intolerance
gluten.org/resources/health...
thyroidpharmacist.com/artic...
thyroidpharmacist.com/artic...
amymyersmd.com/2017/02/3-im...
chriskresser.com/the-gluten...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
thyroidpharmacist.com/artic...
Hypothyroidism is a serious illness, without medication you can become very unwell, ending up in myxodema coma
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: tukadmin@thyroiduk.org
Post with typical Low vitamins due to under medication and detailed supplements advice on how to improve
healthunlocked.com/thyroidu...
Low vitamins causing low TSH high FT4 - endo incorrectly insists on dose reduced
healthunlocked.com/thyroidu...
Reason is dire vitamins
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