I was originally diagnosed with Hashimoto's thyroiditis in June last year. Following several visits to my NHS GP I eventually persuaded him my low energy and pains in my back were not general back pain, he agreed for me to take blood tests. These showed I had Hashimoto's and gave the following results
TSH 11.61 mIU/L range 0.27 - 4.20mIU/L
Serum free T4 level 15.9 pmol/L range 10.00 - 23.00pmol/L
The doctor prescribed me initially with 25mg of levothyroxine and diagnosed me with hypothyroidism. Since then my TSH has fallen and my dose was upper to 100mg. Unfortunately I could not get my TSH to levels which he was happy with and I felt awful, unable to focus always tired etc.
He referred me (fortunately I have health insurance) to a private endo who upped up prescription to 125mg and ran a number of tests, one of which was glandular fever which can back positive. I have seen him and had bloods done a few times following this initial appointment. My last set of bloods came back with the following results
TSH 3.76 miu/L (0.27-4.2),
fT4 24.9 pmol/L (12-22),
fT3 4.5 pmol/L (3.1-6.8),
Vitamin D 75 nmol/L
I also had a genetic test which showed I have a polymorphism affecting the DIO2
gene. Which means I have a problem converting T4 to T3.
He gave me prescription for T3 (private prescription) and asked I drop the T4 to 100mg in addition to recommending I take a high dose of vitamin D3. I have found out T3 is expensive in the UK and I the only place I can get it from at an affordable cost is Germany or the USA.
My goal is to get off the private prescriptions, as each year I claim on my health insurance it goes up 25%, after this term I will not be able to afford it. I spoke with my GP and they will not subscribe T3 despite the test results, I have asked for a referral to a NHS endo. This is really annoying as its wasting NHS money!
I have the following questions and would be grateful if someone can help or provide guidance?
1.I am confused as the above results are all in range apart from my fT4 (high) why would he prescribe more T3? Is there an where I can go to look this up and improve my knowledge on this?
2. Is T3 still prescribed to NHS patients? I am trying to get a referral to an NHS endo to get an NHS prescription longer term. Am I just wasting my time?
3. I have seen lots of bodybuilding websites selling T3 all want cash transfer and are unsecured sites so I dare not use them, could someone PM me sites they have used for T3. At present I have ordered from the USA (expensive and a long wait + having to pay customs) and a German site. I am awaiting to receive the T3.
If you have got this far thank you for reading and if you can help I would be very grateful. I am reaching the end of my tether with this it's a roller coaster of emotions.