I suspected I had hasimotos after reading about it from Thyroid UK and the way I was feeling in October last year
I initially went to my NHS GP and was told my results were normal <--- incredible
I didn't accept this and decided to go to a private GP
my results were as follows, which kind of confirmed my theory (Paid for privately)
T4=102 nmol/L (59-154)
TSH=*5.95 mIU (0.27-4.2)
Free thyroxine=19.1 pmol/l (12.0-22.0).
Free T3=4.7 pmol/l (3.1-6.8)
Thyroglobulin Antibody=*140.1 IU/mL (0-115 Negative)
Thyroid Peroxidase Antibodies=*98.8 IU/mL 0-34
I started taking 25mg levothyroxine
and my next test looked promising (NHS)
TSH= 2.55 mu/L (0.3-5.6)
free T4=13.4 mu?L (6.3-14.0)
I still wasn't feeling 100% and was upped to 50mg of levothyroxine after a discussion with my private doctor.
It was at this point I took a letter from the private doctor explaining to me previous results and their recommendation, I took a copy of all this information to the NHS doctor, and he told me to only take 25mg levothyroxine.
I was really confused what to do but I continued to take 50mg levothyroxine
my next blood test results (NHS)
TSH= *28.8 HIGH mu/L (0.3-5.6)
free T4 (cant remember)
These results scared me and I didn't have a clue what they actually meant of how to interpret them, with no word from my NHS doctor and unable to make an appointment (as usual) I reduced my dose to alternate 25mg/50mg as I thought that was what caused the high TSH reading.
So I went private again to confirm high TSH and clarification (paid for privately)
TSH= *>100 mIU/L (0.27-4.2)
free T4= 12.1 pmol/l (12.0-22.0)
I was now told this is serious and she had never had results so high in 18 years of being a doctor, and advised to find a specialist and to take 100mg levothyroxine for the time being. Not only was I annoyed that such an apparently serious issue was being ignored by my NHS doctor and I had to pay for a private doctor to explain the results to me and advise me on what to do. Its such a roller coaster and I still feel no closer to feeling any better
this is really frustrating trying to sort this out I never have any energy, feeling tired, no libido, no get up and go, and running out of money tbh I cant afford a specialist my muscles in the morning feel like lead weights its hard to explain but the initial effort to move is ridiculous
Is there a hashimoto specialist out there who would like to experiment on me and help me? I think becoming a test subject to someone is the only way for me to get better.
Its nearly impossible to get an appointment at my local NHS doctor, I ring twice a day every day and even after the High TSH results (that I read can actually be life threatening) I didn't even get a phone call of concern or letter or explanation of my results or what I should do about them from the NHS. even if I did get an appointment he rules out or disagrees with the private doctors evaluation. this is why I went private but I can no longer afford to do this. and I hope someone out there can help or give advise.