You are under medicated and need an increase in levothyroxine. Your TSH should be 1 or less!!! You also are positive for anitbodies and should follow a gluten free diet. You also need to get your vitamins etc checked as the likelihood is that all your results will be low. Ask for Vit B12, VIt D, iron , ferritin and folate.
If you can pay for a finger prick test from Blue Horizon or medichecks you will get answers sooner! Once you have them post them on here for comments. In the meantime check out Seaside Susie on here, our expert regarding vitamins etc and supplements.
How long have you been on 50 mcg? Too long probably, your GP needs to go back to medical school.
Been on 50 since October 2017 GP did not like where levels were on 175 I have results of iron etc thankyou
Hi Katj
Clearly you need an increase in Levo dosage... 50 mcg is a tiny dose for someone who's been diagnosed hypo for 7 years. Your TSH is over range and far too high - it should be down around 1. Also your FT4 and FT3 are very low. All those symptoms indicate that you need a dose increase of Levo. You need to ask your GP for an increase, then do a re-test in 6-8 weeks.
Also, what are your B12, ferritin, folate and Vit D levels like? They need to be tested too, thyroid hormone can't work properly if the levels are too low.
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12.
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: tukadmin@thyroiduk.org
Prof Toft - article just published now saying T3 is likely essential for many
So you need to increase your Levo dose back up, in 25mcg or possibly 50mcgs steps,
Ask for coeliac blood test and get vitamins tested urgently. Very likely terrible as you are now so under medicated
Strictly gluten free diet helps many/most of us
When you get back to roughly 250mcg or 175mcg, with good vitamin levels and strictly gluten free, if FT3 remains low then, like many of us with Hashimoto's you may need addition of small dose of T3
You will need T3 friendly endo
Email Thyroid Uk for list of recommended thyroid specialists
You have an inefficient doctor who probably believes that once the patient is prescribed levothyroxine and if the TSH is somewhere in the range (even up to 10) the patient should have no problems.
Once you realise they do not know anything about how the thyroid gland works or its purpose, that's when you have to take your own health into your own hands to get the best possible results on your blood tests.
For you to improve you need 25mcg increases every six weeks until your TSH is 1 or lower. Unfortunately many doctors are so uneducated about clinical symptoms and only look at the TSH and they are happy to keep patients on a dose which doesn't relieve all symptoms and I think that's what type of doctor you have.
Tick off your symptoms in link below. Give a copy to your GP and say you've been given advice by the NHS Choices for help/info on hypothyroidism and that the aim is a TSH of 1 or lower once diagnosed and given levothyroxine.
The aim is a FT4 and FT3 in the upper part of the range - not like yours being in the bottom part. Again doctor is happy yours is at the bottom of the range and this will not improve your health. We need both FT4 and FT3 in the upper part of the range.
T4 (levothyroxine) is an inactive hormone and it has to convert to T3, the only active thyroid hormone which is required in the millions of T3 receptor cells we have in our body, the brain/heart contains the most. So we must have sufficient in order to feel well and relieve symptoms.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.