'You'd be wasting your money"? How could you waste your money as this doctor isn't doing his job in that your TSH should be 1 or lower and you have a very low T3 and should be nearer 5 or 6. With a TSH nearly 11 you are clearly underdosed. I doubt 100mcg every day will reduce your TSH to 1 in a six weeks.
Research has shown that a combination of T4/T3 suits many better than T4 only. I am not medically qualified but I'd be apt to add T3 to T4. Your money wouldn't be wasted if you raised your FT3 towards the top of the range. Your TSH would also reduce.
Thank you for your reply I have went to him about stopping t3 that I wasn’t happy and that I definitely didn’t feel right but he said only private endros recommend it that they can no longer prescribe
I do know many surgeries have stopped T3 due to whatever they information they received but many on the forum have consulted with their MPs about the withdrawal. I don't know if you've read the following:-
Dr Toft, who is an Emminent Endocrinologist and also Consultant to the Queen when in Scotland wrote this a few weeks ago. Even he is disguested how things have gone in the NHS, just as our Dr Skinner (Virologist) stated to the whole of the Endocrinology that they were putting patients in a parlous situation.
I will read all of it I am so angry because I actually feel worse today it’s like I’m so drowsy can hardly hold my head up . I’m disgusted because it took a long time to get done improvement now back to square one 😩
It is outrageous really and we are at the brunt due to greedy pharmaceutical companies getting blood out of a stone by increasing price astronomically. You will feel bad now as you know you can get better if you have T3 prescribed but prevented.
If you haven't seen your MP I'd make an appointment and complain. It is not our fault that the price has risen so much.
It’s disgusting I’ve worked hard from I left school until I couldn’t work anymore because of this and can’t buy the medication I need because of the price but ludicrous that my doctor can’t or won’t prescribe it
Thanks for this . I think I will order from Mexico I am not sure which one from outside uk would be the best to buy
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: tukadmin@thyroiduk.org
Prof Toft - article just published now saying T3 is likely essential for many otherwise high dose Levothyroxine is required to raise FT3 and often suppressed TSH as result
I thought your Gp can’t stop prescribing it until an Endocrinologist says to. With any luck it’ll take months to get an appointment with an Endo. So in the meantime they should. Also take your results back to them and show the difference and explain your symptoms now as opposed to then.
Your GP hasn't a clue. You are now very undermedicated and he is right to give you an increase, but I suspect you need more than the equivalent of an extra 12.5mcg a day - esp as your results show very poor conversion. What were you on when you had T3? I'd buy T3, personally and tell the GP to sit on it.
Well, that works out as approx 105 levo equivalent, so you aren't on the same dose yet. And if you are a poor converter, you need much more to get free T3 up to a reasonable level. Just go and buy your own T3 (and fight to get it reinstated).
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.