Thyroid UK

New results

After having t3 stopped this is my new results

Tsh 10.4(0.27-4.20)

T4 19.2(12-22)

T3 3.2(3.1-6.8)

I was on alternate 75/100

Gp just rang to tell me to stay on 100 everyday

I mentioned t3 as in I can source myself he replied you would be wasting your money

Your advice would be very much appreciated

20 Replies
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'You'd be wasting your money"? How could you waste your money as this doctor isn't doing his job in that your TSH should be 1 or lower and you have a very low T3 and should be nearer 5 or 6. With a TSH nearly 11 you are clearly underdosed. I doubt 100mcg every day will reduce your TSH to 1 in a six weeks.

Research has shown that a combination of T4/T3 suits many better than T4 only. I am not medically qualified but I'd be apt to add T3 to T4. Your money wouldn't be wasted if you raised your FT3 towards the top of the range. Your TSH would also reduce.

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I have just looked at one of your past posts and I see that the GP withdrew the T3 he used to prescribe.

They were not to do so without consulting with the patient first.

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Thank you for your reply I have went to him about stopping t3 that I wasn’t happy and that I definitely didn’t feel right but he said only private endros recommend it that they can no longer prescribe

Thanks for your help

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I do know many surgeries have stopped T3 due to whatever they information they received but many on the forum have consulted with their MPs about the withdrawal. I don't know if you've read the following:-

healthunlocked.com/thyroidu...

The following was also posted:-

healthunlocked.com/thyroidu...

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Dr Toft, who is an Emminent Endocrinologist and also Consultant to the Queen when in Scotland wrote this a few weeks ago. Even he is disguested how things have gone in the NHS, just as our Dr Skinner (Virologist) stated to the whole of the Endocrinology that they were putting patients in a parlous situation.

healthunlocked.com/thyroidu...

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Thanks shaw for this

I will read all of it I am so angry because I actually feel worse today it’s like I’m so drowsy can hardly hold my head up . I’m disgusted because it took a long time to get done improvement now back to square one 😩

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It is outrageous really and we are at the brunt due to greedy pharmaceutical companies getting blood out of a stone by increasing price astronomically. You will feel bad now as you know you can get better if you have T3 prescribed but prevented.

If you haven't seen your MP I'd make an appointment and complain. It is not our fault that the price has risen so much.

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It’s disgusting I’ve worked hard from I left school until I couldn’t work anymore because of this and can’t buy the medication I need because of the price but ludicrous that my doctor can’t or won’t prescribe it

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Thanks for this . I think I will order from Mexico I am not sure which one from outside uk would be the best to buy

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You are extremely under medicated

TSH is way above range.

On replacement thyroid hormones TSH should be around one and FT4 towards top of range and FT3 at least half way in range

See a different GP in the practice to get dose of Levo increased by 25mcgs and it's highly likely you now have very low vitamin levels.

Ask for vitamin D, folate, ferritin and B12 to be tested

You will need these corrected with supplements FIRST before restarting T3

Typical posts after T3 stopped showing dire vitamin levels as direct result

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Why T3 should not be stopped

healthunlocked.com/thyroidu...

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

please email Dionne:
tukadmin@thyroiduk.org

Prof Toft - article just published now saying T3 is likely essential for many otherwise high dose Levothyroxine is required to raise FT3 and often suppressed TSH as result

rcpe.ac.uk/sites/default/fi...

Do you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies?

If so low vitamin levels are extremely likely

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Thanks for your reply

I got my bits tested I have to ring tmw for results I will update

My gp increased levo to 100 every day

Thanks slow dragon

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Yea I am Hashimoto

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I thought your Gp can’t stop prescribing it until an Endocrinologist says to. With any luck it’ll take months to get an appointment with an Endo. So in the meantime they should. Also take your results back to them and show the difference and explain your symptoms now as opposed to then.

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Your GP hasn't a clue. You are now very undermedicated and he is right to give you an increase, but I suspect you need more than the equivalent of an extra 12.5mcg a day - esp as your results show very poor conversion. What were you on when you had T3? I'd buy T3, personally and tell the GP to sit on it.

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I was on 75 t4 10 t3 thanks for your reply I can’t stop sleeping

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Well, that works out as approx 105 levo equivalent, so you aren't on the same dose yet. And if you are a poor converter, you need much more to get free T3 up to a reasonable level. Just go and buy your own T3 (and fight to get it reinstated).

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Yea I was thinking of ordering from Mexico do you know which would be the best to order from i have become quite sensitive to meds now

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I do fine on Tiromel, which is pretty cheap.

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Thanks for getting back would you have an Andres for that sorry to be a nuisance

I’ve read other posts some take ages to get or out of stock

😊

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Can only give out addresses by PM.

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