Thyroid UK

Hoping endocrinologists will be defunct, irrelevant, out of work

bbc.co.uk/news/av/business-...

Just hoping that science will by-pass endocrinologists, and go straight to a solution that does not involve these idle, idiotic and overly paid waste of oxygen. Yes, sorry, I am angry and cynical after 36 years of being left to rot.

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They're already irrelevant in my book marigold22 !! Completely agree with your sentiments, I've had my fill of idiot NHS doctors.

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Mine too. However I do worry about all the folk with thyroid problems who have still to realise that they do in fact have thyroid illness

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The long and lonely road? Even with a diagnosis there’s little guarantee of effective treatment, another hurdle. My GP has just suggested I find ‘ a good’ Endo as he’s reached the end of the line with me and can’t offer anything else. Neat considering most of the treatment suggestions came from me care of this forum.

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*shakes head*, so frustrating for you Baobabs.

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I know marigold22 and we must all continue to 'spread the word'. Believe it or not, I found out about hypothyroidism from a UK cycling forum populated mainly by men!

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I so wish there was more we could do collectively than simply spread the word. I suppose oceans begin life as trickling streams. Attempting to be poetic or I’ll swear.

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Not connected to thyroid endocrinologists but I was out for dinner last night and someone commented to one chap that he had lost a lot of weight.

Yes, he said. It’s my diabetes medicine (he’s T2) seems it’s something new, he then went in to say that the doctor told him ‘not to tell everybody what he was on otherwise everyone would want it so that they could lose weight!’ I don’t know what he is taking though.

I came home muttering all tha way about endocrinologists. Also wondering why, if they could give patients a drug that would fix their diabetes and allow them to either lose or not pile on weight, would on earth do they not give it to them?

That ties in with my thinking about how hypo patients are treated ie deep suspicion that they want more levo and /or T3 not to make them feel well but because they want it to help them lose weight.

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Well, that's not really a secret.

Type in Google "new diabetes medication weight loss" and you'll get answers.

Some (most ?) doctors really think public are stupid Neanderthals.

Well... some people are but most aren't.

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Just had a google. It’s not even that new. I just can’t understand the ‘don't tell anyone’ mentality. Why have people on drugs that encourage weight gain when you could put them on a drug that doesn’t.

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Oh I absolutely agree.

Since being on this forum and taking my own experience with my own ex- GP into equation I come to conclusion it's all to do with money and NHS privatization.

For the last three years my ex-GP kept repeating to me to seek help from private doctors (?!) not him (yet was happy to accept pay cheque from my obligatory NI!) and at the same time tried to remove all my medications from repeat prescription. And I don't have many - only 4, all related to officially diagnosed severe Hashi and PA.

So 1st, he took away t3 successfully, then tried b12 and levothyroxine... (!?)

Newer drugs are more expensive. Why prescribe more expensive when, if they must treat you, they can give cheap 25p tablets instead.

As a diabetic or thyroid patient - you have all meds free. Having thousands patients like that - it's a lot of money for NHS to spend.

There is no compassion or need to help sick people in NHS medical profession in UK. They're all run like businesses. They're paid too much money for working in non profit organization and they protect their own easy earnings. So when something has to go - it's not goin to be their salary but patients and their medications.

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Hello Fruitandnutcase. During my plight to secure T3 meds I have read info alluding to misuse and abuse of T3 by folk who wish to loose weight rather like the anabolic stories we hear about.

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There are people who want to use or misuse T3 but I got the impression this guy’s nurse was talking about other genuine diabetic patients who were putting on weight because they were taking different drugs to what this guy was on and I understand that some drugs that are taken to control T2 Diabetes can cause some people to put on weight.

There are people wanting to use drugs for other reasons but genuine diabetic patients shouldn’t be a problem as they are known to their doctors (as are people who are hypo although hypo patients as we read on here can have a very hard time getting the amount of levo or whatever they need to keep them well.)

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From some of the comments I've seen on here over the years there is no guarantee that a private one will come up to scratch either! It's a pity the two subjects are in the same melting pot!

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Has anyone here gone private ? I’m considering it as my tsh has gone up alot despite being on levo. When I asked the doctor why she muttered something about if it is autoimmune it will happen. So i asked to test the antibodies again to confirm this and she said there is no point as it doesn't really matter....idoit🙈

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These medics must have their duff comments on a loop tape. I was told the same thing. Pity frustration wasn’t an asset as we’d all be flying.

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Dewberry1 I went private to see a Professor of Endocrinology (back in 1993). Had been very ill since 1981. He was a waste of money and oxygen. You are better off getting a private blood test (Medichecks or Blue Horizon). They both do blood tests for the two thyroid antibodies - peroxidase and thyroglobulin. You definitely need to do both of them. The NHS did one of them years ago for me, it returned as normal, but the one the NHS did not test returned very high when I did a private blood test. So for 35 years I had Hashimotos Thyroiditis which = inflammation in my body; and not Hypothyroidism as the NHS told me. Once I had eliminated the problems of Hashimotos, plus was on a high enough dose of T3, I got better.

You also say "despite being on Levo"..... I personally think it seems that an awful lot of forum members here are having big problems whilst takingT4 /levo.

At the end of the day, Levo is a big pharma drug. NDT or, for me, T3 are ' a tad more natural for the body'. I will probably get shouted down here, but if you have been struggling for a few years (haven't read your profile), you perhaps ought to try NDT or T3 instead of taking Levo.

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Put a new post for people to advise you about good private endo in your area.

Still, no guarantee as I've seen someone recommending "good" NHS endo in my area (Dorset) and I know for a fact she's useless and have no idea about hormones and/or endocrinology. She's also one who approved my GPs t3 treatment removal.

My appointment with that woman went like that:

-Doctor, this is 30 symptoms I'm experiencing since last year.

-Well it's not your thyroid.

-What is it then doctor?

-I don't know.

Didn't run any tests either.

Later came to light I had early menopause or ovarian failure.

Something hormone doctor should know!

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I couldn’t agree more, however, easier said than done as many are aware.. My GP only acknowledged the existence of T3 when I mentioned I’d read about it and now he suggests it is the best way forward. When I asked why he hadn’t suggested it before now he said because it’s not available in the country where I work. I was fuming and said this was no reason why not to mention it and that if he felt as ghastly as I did he would have readily suggested it. Perhaps I went too far by asking was this the professional thing to do? I told him my motivation was desperation and that I would take poison and travel to the moon in pursuit of some treatment that would help me feel better.

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I have not had my t3 tested. I haven’t been diagnosed long only since sept. But I still am not feeling too well. I am trying to take control of this and do what I can to get more information and try other things. But when I bring this up with the doctors they look at me like I have spent too much time on google!

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And yet they're now suggesting we use google to avoid clogging up their GP surgeries! Can't find the link now, but someone posted this recently.

If you can afford it, I'd recommend getting a private thyroid profile done through somewhere like medichecks.com. I'm fast giving up on expecting much informed help from my GP or endocrinologist. It might cost you in money, but will save you a lot of energy!

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Yes it’s odd they seem to not want input from us but in the long run us taking responsibility for our own health will help the long run.

I have been in touch with bupa we shall see what happens

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