Please help

[Flower1lassie2]

Hi I don't have any relationship with my gp as I'm on NDT , he won't do a thyroid screen only tsh so I get a private full test done , he is not interested in the results he just pits them in the bin!! I haven't seen him for a year so nowhere to turn really , anyway I've posted my results could someone please advise

Total thyroxine t4 is 72 nmol/L 59-150

Tsh 2.44 mIU/L. 0.27-4.2

Free thyroxine *10.9. pmol/I. 12.0-22.0

Free t3 4.7. pmol/L3.1 -6.8

25 OH vitD 80 nmol/L. 50-200

I am on 2 grain per day

Thanks 🙏

[Clutter]

Flower1Lassie2,

If you feel well then stick with 2 grains. If not, consider raising dose until FT3 is 5.5 - 6.8 and TSH is 0.27 -1.0 or lower. FT4 is often low, even below range, when taking NDT. It doesn't matter as long as FT3 is good.

You could increase by 1/2 grain now, and again in 2 weeks. Hold at 3 grains for 6-8 weeks and have a thyroid test including FT3 before increasing further.

VitD is replete >75 but will drop if you don't maintain level with 2,000iu daily until end of March. Take vitD 4 hours away from NDT.

[Flower1lassie2 in reply to Clutter]

Thanks for replying Cluttet , no I don't feel too great so tomorrow I will as suggested add 1/2 grain and again in 2 weeks if required , it's hard with no GP to help I appreciate your taking the time to reply , thanks

[TSH110 in reply to Flower1lassie2]

Flower1lassie2

I don’t bother with the doctor for my thyroid treatment and your GP sounds awful and not worth consulting with. I don’t do blood tests but just go on how I feel and so far so good. It can feel lonely but it is also empowering.

You will be able to get a more optimal dose and feel better again you are just a bit undermedicated.

This guide is very good on NDT generally and how to achieve optimum NDT dosage. I have used it to good result.

tpauk.com/main/article/trea...

I’d follow Clutter’s advice above and have a look at the TPA guide for background.

Hope you start to feel better soon 😉

[Flower1lassie2 in reply to TSH110]

Thanks for replying and I will check out the guide source you mentioned and yes Clutter is always on the ball with problems , thank god gir Clutter x

[wowserclo]

Seriously, try some other gp practices and keep seeing them until you find someone better. At my practice when I fell ill I got told Hashimotos could be fixed with levothyroxine and was “nothing serious” and that my vitamin b level of 283 was normal. They were so so awful. I took a shot at another doctors practice and have found a wonderful gp who is working WITH me on this. She will test me for anything I ask and has even said I probably know more about my condition than her! Keep trying to find someone in your area there will be someone better than him for sure. Good luck x

[Flower1lassie2 in reply to wowserclo]

Thanks for replying , I am glad you found a listening , helpful GP , I asked mine if we could work together he said the NHS were responsible for my health not me !! He only offers Levo nothing else , it doesn't do it for me . The next place to me is the same practice.

[Hidden]

You have not said how you feel, if you feel alright stick to two grains if not 2.5 maybe.

I never felt 100% when on 2, 2.5 or 3 and have added some T3 in and now feel OK.

What are the result on the minerals?

[Flower1lassie2 in reply to Hidden]

Thanks for your reply , I feel awful , angry , tired, low mood , swollen leg and just want to be alone , miserable sod I am

[Hidden in reply to Flower1lassie2]

I am sorry that you feel so bad, take care please and you will recover the good people on this site have helped me and now I am better.

[Flower1lassie2 in reply to Hidden]

❤️

[silverfox7]

I was told to increase by quarters once I reached 2 grains as it's easy to miss your sweet spot and I got up to 3 grains and didn't feel quite there but my body wouldn't take any more! I was tested at this point and Endo told me to drop down to 1.75 and he was right! Since then I'm on more medication for cancer treatment and have had to move up to 2 grains as an absorption issue now but otherwise things going well. I side have an absorption issue but corrected that before I changed over. I found that being slightly over medicated and slightly under are too similar so now if I am uncertain I always drop back a quarter and see what happens over a couple of weeks. If worse I know I should have gone up a little.

[Flower1lassie2 in reply to silverfox7]

Thanks for replying and yes its so difficult to get the right dose and also difficult to know if you are under or over because the symptoms are so similar , when I started on Levo years ago it worked for a while then not and seems similar on NDT , so complex , I'm moaning on about me when you have Cancer to deal with , I hope you get better soon x

[TSH110 in reply to Flower1lassie2]

Flower1lassie2

I find temperature is the best guide for me: if I feel cold I am undermedicated, if it is not quite the right dose I get bouts of hot sweats, if I am over I start feeling warm all the time.

I feel angry either way overnor under (and sometimes at the right dose! My grandmother was a mercurial woman) but very agitated and nervy if I am over.

You do sound a bit hypo to me

[Flower1lassie2 in reply to TSH110]

Thank you for replying x

[silverfox7 in reply to Flower1lassie2]

Cancer clear at the moment but thank you for you kind words. Just recently had my first annual check up!

[Flower1lassie2 in reply to silverfox7]

❤️ May you continue to keep well x

[snrise2801]

your GP has a duty of care towards you and if he/she is not listening to you and not interested, ask to transfer to another doctor within the practice or better still change GP surgery, I changed my surgery in September, then I have just changed to another GP within the practice because the first doctor, told me I was a very complex case and he didn't know what to do with me. so wrote to practice manager, I am now with a senior doctor with more experience. Sometimes its good to get a fresh pair of eyes looking at things. good luck.

[Flower1lassie2 in reply to snrise2801]

Thanks x fingers crossed 🤞

[Maribee in reply to snrise2801]

Same here....mine just looks at me with a puzzled look on his face, squinting his eyes up....I have multiple health issues, two inherited conditions etc...he real,y doesn't know or doesn't want to know.

I asked to change doctors yesterday.

Wish me luck

[Flower1lassie2]

Thank you for replying , how on earth do you cope with 5 family members with thyroid problems , that must be tough x

[Maribee]

I too gave a GP WHO SIMPLY DOESNT LISTEN, INTERUPTS...and makes you feel guilty fir bothering him....I changed mine today......DO IT...NEW Years RESOLUTION !!! Good luck.

[Flower1lassie2 in reply to Maribee]

Thanks , I'm trying to find one x

[Maribee]

Just ask at your surgery to change your doctor....a woman usually listens better than a man, is sympathetic and is equally qualified.

It is your right to do this.

You don't have to give a reason, just say you'd like to change.

Good luck.

[Flower1lassie2 in reply to Maribee]

Thanks x