Feeling fine on t3/ndt but?

[DonnyJam]

Hello everyone.

Been a while since I last posted asking for advice.

Right the thing is even though as the title says I'm feeling fine. I've had letters firstly from the endo and then from my gp a few days later, I might add that this is very strange from them as they couldn't usually organise a p155 up in a brewery.

I'm currently taking 1.5 grains of ndt (greater pharma) and 25mcg of T3 and really couldn't complain much about anything other than some slight blurred vision now and then so I'm planning on dropping the. 5 grain of ndt as I've been slowly reducing for while at the same time just trying to listen to my body. I've even seemed to have gotten some control back over weight management and temperature control. I used to always be way to hot even when overs were freezing, I seem to be normal enough there. The headaches in the morning have gone. In a nutshell I feel fine.

Here comes the but, had a routine blood test about 3 weeks to a month ago and just thought nothing of it as I've been going the way I am for a while now with no issues. Then got the letter from the endo asking me to contact my gp which I didn't get round to doing before the gp letter came.

The gp states that my t4 to be normal at 6 but my tsh is raised at 14. They have concerns, asking me what I'm taking for treatment as they now have only just realised I haven't collected my prescription in over a year lol......

I obviously plan to contact my gp next week but I found it strange that my tsh is raised. I expected it to be suppressed from the t3 and also as I feel fine I expected it to be low and everything else high.

So sorry for the very long and poorly structured post but has anyone got any thoughts on the current results or advice on how I should proceed when contacting my gp? I plan on telling them that I self medicate with t3 and ndt because they refused to let me supplement t4 with t3 and if they wish for me to adjust my dose on their say so I would prefer if they would do a full thyroid panel along with antibodies first.

Thoughts and advice always greatly received

[startagaingirl]

Hi - if you could give us the latest results you have, with ranges, then we will be able to advise.

[DonnyJam in reply to startagaingirl]

Hi,

I don't have them. That's all I got from my gp was him stating that my t4 is normal at 6 but my tsh is raised. And then he stated that they have only just noticed I don't pick up my script for levo and want to know what I'm taking in place of it due to me odd results

[startagaingirl in reply to DonnyJam]

Hi - then I would suggest asking your gp's receptionist for a copy in advance of any appointment and posting for advice. I am afraid there is not really enough info in your post for proper advice at the minute.

Gillian

[DonnyJam in reply to startagaingirl]

Cheers Gillian. I knew that would be the case but wondered if anyone had a general thought on if it was normal for tsh to be raised while on ndt and t3. I expected My t3 to be suppressed, maybe not because of ndt but surely with t3 it usually would be....My last test will have been just tsh and t4. They have only ever checked my t3 once and that was right after my diagnosis years ago.

[Clutter]

Donnyjam,

We need to see the results with the lab ref ranges. If FT4 is within normal range it is weird that TSH is so elevated. TSH 14 is high and indicates undermedication. On NDT and T3 FT4 is usually very low, sometimes below range.

Do you take biotin as a supplement? Assays which use biotin can skew results when the patient takes biotin.

[DonnyJam in reply to Clutter]

I thought it was odd Clutter.

I will ask on Monday when I call them if they have the full results with lab ranges. I don't take biotin unless it could be in something else I take like multivitamins? I think I will see if my GP will entertain doing a full thyroid panel as well, not sure I'll get any joy there though

[Clutter in reply to DonnyJam]

Donnyjam,

Check your multivitamin just in case. If it does have biotin in it you should stop taking the multivit a week prior to ALL blood tests, not just thyroid. FT3 is rarely done in primary care but it is worth asking and perhaps repeating TSH and FT4 if you are feeling well on your current meds. You can order private thyroid tests via thyroiduk.org.uk/tuk/testin... Medichecks do #Thyroid Thursday discounts.

[DonnyJam in reply to Clutter]

Just checked clutter and my multivitamins do contain biotin at 50 ug. Could that be enough to skew results that much?

I've had blue labs private tests before but not for a long time. Far to expensive to be a regular thing.

I've taken my multivitamins today but by the time I could probably get into my doctors for a blood test I'll be clear if I stop from today.

[Hidden]

Hi I self medicate with 1 grain of NDT and 1 x 25mcg T3 every day. It has taken me 18 months to feel this well and I would only alter it myself if I become unwell again.

I never feel overly cold or hot. More importantly I never visit the Doctors or Endos I had enough of them early last year.