Introducing myself

[Falconwings]

I believe I was assigned the incorrect community, as I have CFS-ME and breast cancer and not thyroid issues.

I signed up for information for my best health and recovery fro the devastating weakness CFS-ME can cause. I am always open for new approaches.

I treat cancer naturally and refuse to take aromatase inhibitors and the mess for bone density, because the side effects outway the benefits, especially when eating clean and using natural supplements can be more powerful and less toxic.

Had I done my research I would have NEVER had 33 radiation treatments after surgery.

I am m always interested in natural ways of treatment for better health d can share what treatments I use if there is any interest.

Blessings for better health to all

[bluebug]

You, yourself, assign yourself to communities on healthunlocked. If this is the wrong one then click on the square made of 9 dots right at the top and search for a more relevant community.

[Falconwings in reply to bluebug]

Thank you bluebug. I appreciate your supportive information

May you feel well and experience much support

[greygoose]

If you have been diagnosed with CFS/ME, it's always worth getting your thyroid levels tested, because doctors have been known to make the wrong diagnosis - especially as the symptoms are much the same, and there is no blood test for CFS.

However, doctors often refuse to do all the right tests, due to cost (it's all about money!) but, if it were me, I would want the full tests done as an investment in my future health.

You can do blood tests privately, see here :

thyroiduk.org/tuk/testing/p...

And, I would get the most comprehensive :

TSH

FT4

FT3

TPO antibodies

Tg antibodies

vit D

vit

B12

folate

ferritin

If you think you don't understand the results, you can always post them on here and members will explain them to you.

Best wishes,

[Falconwings in reply to greygoose]

Thanks much, I was diagnosed in 1992 by an Immunologist after a barrage of blood and thyroid tests.

I have since had my thyroid tests at least three more times with new doctors. They all came out normal.

I am exasperated right now.

How kind of you to give me this information.

Blessings for good health

[greygoose in reply to Falconwings]

Do you have copies of those results? Just because a doctor says they're 'normal', doesn't mean they are. That is something you rapidly learn on here. If you don't have the copies, then you should ask for them, because you need to know exactly what was tested - they don't always do the right tests - and exactly what the results are. Doctors are notorious for not being able to read results correctly, I'm afraid!

[Falconwings in reply to greygoose]

No I don't have any copies and I agree with you about results and doctors. I have to start from scratch and requests the specific tests that were written here.

I have so much gratitude for all this information given and certainly will follow up on the suggested tests and reading.

Now I can see results of tests in my charts on line, which is how I found an ascending aortic aneurysm from a cat CT that was done for cancer. I firmly believe the radiation treatments caused this new issue.

Thank you greygoose for your time and information.

May you feel well and enjoy your weekend. 😊

[greygoose in reply to Falconwings]

Thank you, and you're welcome. Have a good weekend, too.

[humanbean]

Welcome to the forum.

You'll find all of the communities on HealthUnlocked (HU) in a list here :

healthunlocked.com/find

First it shows a selection of some of the popular communities, and if you keep scrolling down you come to an alphabetical list of communities. Click on any that interest you and then choose "Follow".

To remove yourself from a community go to your profile :

healthunlocked.com/user/fal...

Then click on "Edit profile" which is near the top of the page,

Then scroll down the page until you find a list of the communities you are following.

Untick any that you want to leave.

Then click on "Save changes" at the bottom of the page.

[Falconwings in reply to humanbean]

Thank you humanbean for the complete instructions you posted 😊

[Marz]

Hi and Welcome. It is quite possible you have come to the correct Forum CFS can be linked to LOW thyroid hormone - especially LOW T3. You can have a working thyroid that produces T4 - a storage hormone - but due to vitamin and mineral deficiencies it is possible it does not convert into the ACTIVE thyroid hormone T3. Your cancer treatment too could have affected thyroid and nutrient levels.

There is a receptor for T3 in every cell of the body - so having a good level is important otherwise there is not enough to go around and things begin to go wrong. T3 creates the energy in your cells - it is our metabolism in a nutshell.

As you mentioned you like a natural approach to wellness - I would like to mention the necklace type wrinkles on your neck. I live in Crete and once heard of a Greek Doctor who on noticing the aforementioned wrinkles would be able to diagnose a thyroid issue. It is the body pointing the way I had vitiligo for many years over the thyroid area before diagnosis - now gone - another example of the body showing us what's what !

greygoose has given you good advice about the testing required and people here will be more than happy to help with the results.

Wishing you well ....

[Falconwings in reply to Marz]

Endless gratitude for your response graygoose 😊

I'll check the thyroid issue out and yes will go natural. I have had numerous tests done for my thyroid and they always came out normal.

I have had the neck rings forever .. They aren't anything new I must reread your post and contemplate this information. CFS also has cognitive issues intermittently. Today has been a difficult day.

Again, thank you dearly for your post 😊

[Marz in reply to Falconwings]

You really need to obtain copies of all your test results - they are legally yours. That way you can see what was tested and what was forgotten.

Normal is an opinion rather than a result and usually means you are in range. It is important to know where you are in range. Often only the TSH is tested which tells you very little as it is not a thyroid hormone. You also need FT4 & FT3 tested along with anti-bodies TPO & Tg to rule out Hashimotos.

If your GP will not do all the tests Private Testing in the home is available through Thyroid UK as suggedted by greygoose. I am Marz by the way !!

thyroiduk.org

Check out ABOUT TESTING on the menu where you will see a couple of companies Medichecks and Blue Horizon.

You mention having your neck wrinkles for a long time and you also mention your CFS diagnosis was way back in 1992 - so I would ask for all your test results from back then. It is possible you have had a missed thyroid issue all along. You would not be the first on this forum 😊

[Falconwings in reply to Marz]

Yes Marz I realized I got the name incorrectly after I posted. Sorry about that.

My PC is a wonderful man and if I ask for these tests he will most certainly order them to help me improve my health if possible. I will definitely requests these tests. I checked the symptoms of Hashimotos and I don't fall into this category. This is all so complicated, however I will write this all down and requests those specific tests.

Thank you, Thank you, Thank you 😊

[Falconwings in reply to Falconwings]

By the way I do know some CFS/ME patients that also have Hashimotos. However they still deal with CFS/ME as well.

Again, Thank you 😊

[Marz in reply to Falconwings]

Possibly because they are not optimally treated and the FT3 is not adequate ... 75% of the range. Possibly low vitamins and minerals too ....

[Marz in reply to Falconwings]

I was diagnosed with Fibro in 2000 and Hashimotos here in Crete in 2005. It really is good to rule out things before settling into one box 😊

Have been on this Forum for over six years and have read many a post whereby Docs have missed the thyroid due to poor testing and even poorer understanding of the results.

Glad you have a good Doc to help you. When you have your results do post them in a new post so we don't miss them. 😊

[Clutter]

Falconwings,

You can find the communities you want by clicking on the link below:

healthunlocked.com/find

[Polaris]

Hello Falconwings

I've just finished reading the book, " Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis - it's mitochondria, not hypochondria" by Dr Sarah Myhill. I'd recommend it if not already read. Dr Myhill treats with, as well as other supplements, vitamin B12 injections.

Many doctors know very little about the complexities of PA/B12 deficiency which is a common and serious condition and often misdiagnosed as CFS/ME.

Very best wishes for good health.

[Marz in reply to Polaris]

Dr Myhill also suggests having the Thyroid correctly tested. Her books are great as is her website - like having a Doctor in your house. 😊

drmyhill.co.uk

[Falconwings in reply to Marz]

Mart thank you kindly for the website info. I certainly will check it out. It appears Australia is doing more for CFS/ME than most countries.

Heartfelt thanks to all here with responses.

😊

[Marz in reply to Falconwings]

Are you in Oz ?

[Falconwings in reply to Marz]

No but my cognitive issues are in Oz! If that was a sarcastic question. I live in Florida, USA

[Marz in reply to Falconwings]

I asked if you lived in Oz only because you mentioned it above.

We have lots of members here from the US - it seems you encounter similar issues keeping Big Pharma out of the picture 😎😎

[Falconwings in reply to Polaris]

I have read most books and updated articles on this devastating illness. That theory is the latest. I do get B12 shots from my doctor every month and take supplements and herbs to rebuild my immune system and overall good health.

There is no sure identification or cure yet. If there was, the over one million sufferers in the US would jump on it in a heartbeat.

I would stand on my head for 3 days if this was the cure. Treatments can give temporary relief, but no cure.

I await the day the CDC takes this issue seriously, however I may not see it due to the health costs.

Thank you kindly for your response. I will check out the book anyway, because all knowledge is helpful.

[Marz in reply to Falconwings]

Also her other book - Sustainable Medicine - is a great read ....

[Polaris in reply to Marz]

Have only read sample (longer than most) on Kindle Marz, but this was almost a book in itself and is definitely next on my list!

I liked the fact that she obviously researches thoroughly, listens to her patient and considers patient history a huge part of diagnosis......

[Marz in reply to Polaris]

If I lived in the UK I would send you my copy 😊