I believe I was assigned the incorrect community, as I have CFS-ME and breast cancer and not thyroid issues.
I signed up for information for my best health and recovery fro the devastating weakness CFS-ME can cause. I am always open for new approaches.
I treat cancer naturally and refuse to take aromatase inhibitors and the mess for bone density, because the side effects outway the benefits, especially when eating clean and using natural supplements can be more powerful and less toxic.
Had I done my research I would have NEVER had 33 radiation treatments after surgery.
I am m always interested in natural ways of treatment for better health d can share what treatments I use if there is any interest.
Blessings for better health to all
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Falconwings
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If you have been diagnosed with CFS/ME, it's always worth getting your thyroid levels tested, because doctors have been known to make the wrong diagnosis - especially as the symptoms are much the same, and there is no blood test for CFS.
However, doctors often refuse to do all the right tests, due to cost (it's all about money!) but, if it were me, I would want the full tests done as an investment in my future health.
Do you have copies of those results? Just because a doctor says they're 'normal', doesn't mean they are. That is something you rapidly learn on here. If you don't have the copies, then you should ask for them, because you need to know exactly what was tested - they don't always do the right tests - and exactly what the results are. Doctors are notorious for not being able to read results correctly, I'm afraid!
No I don't have any copies and I agree with you about results and doctors. I have to start from scratch and requests the specific tests that were written here.
I have so much gratitude for all this information given and certainly will follow up on the suggested tests and reading.
Now I can see results of tests in my charts on line, which is how I found an ascending aortic aneurysm from a cat CT that was done for cancer. I firmly believe the radiation treatments caused this new issue.
Thank you greygoose for your time and information.
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Hi and Welcome. It is quite possible you have come to the correct Forum CFS can be linked to LOW thyroid hormone - especially LOW T3. You can have a working thyroid that produces T4 - a storage hormone - but due to vitamin and mineral deficiencies it is possible it does not convert into the ACTIVE thyroid hormone T3. Your cancer treatment too could have affected thyroid and nutrient levels.
There is a receptor for T3 in every cell of the body - so having a good level is important otherwise there is not enough to go around and things begin to go wrong. T3 creates the energy in your cells - it is our metabolism in a nutshell.
As you mentioned you like a natural approach to wellness - I would like to mention the necklace type wrinkles on your neck. I live in Crete and once heard of a Greek Doctor who on noticing the aforementioned wrinkles would be able to diagnose a thyroid issue. It is the body pointing the way I had vitiligo for many years over the thyroid area before diagnosis - now gone - another example of the body showing us what's what !
greygoose has given you good advice about the testing required and people here will be more than happy to help with the results.
I'll check the thyroid issue out and yes will go natural. I have had numerous tests done for my thyroid and they always came out normal.
I have had the neck rings forever .. They aren't anything new I must reread your post and contemplate this information. CFS also has cognitive issues intermittently. Today has been a difficult day.
You really need to obtain copies of all your test results - they are legally yours. That way you can see what was tested and what was forgotten.
Normal is an opinion rather than a result and usually means you are in range. It is important to know where you are in range. Often only the TSH is tested which tells you very little as it is not a thyroid hormone. You also need FT4 & FT3 tested along with anti-bodies TPO & Tg to rule out Hashimotos.
If your GP will not do all the tests Private Testing in the home is available through Thyroid UK as suggedted by greygoose. I am Marz by the way !!
Check out ABOUT TESTING on the menu where you will see a couple of companies Medichecks and Blue Horizon.
You mention having your neck wrinkles for a long time and you also mention your CFS diagnosis was way back in 1992 - so I would ask for all your test results from back then. It is possible you have had a missed thyroid issue all along. You would not be the first on this forum 😊
Yes Marz I realized I got the name incorrectly after I posted. Sorry about that.
My PC is a wonderful man and if I ask for these tests he will most certainly order them to help me improve my health if possible. I will definitely requests these tests. I checked the symptoms of Hashimotos and I don't fall into this category. This is all so complicated, however I will write this all down and requests those specific tests.
I was diagnosed with Fibro in 2000 and Hashimotos here in Crete in 2005. It really is good to rule out things before settling into one box 😊
Have been on this Forum for over six years and have read many a post whereby Docs have missed the thyroid due to poor testing and even poorer understanding of the results.
Glad you have a good Doc to help you. When you have your results do post them in a new post so we don't miss them. 😊
I've just finished reading the book, " Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis - it's mitochondria, not hypochondria" by Dr Sarah Myhill. I'd recommend it if not already read. Dr Myhill treats with, as well as other supplements, vitamin B12 injections.
Many doctors know very little about the complexities of PA/B12 deficiency which is a common and serious condition and often misdiagnosed as CFS/ME.
I have read most books and updated articles on this devastating illness. That theory is the latest. I do get B12 shots from my doctor every month and take supplements and herbs to rebuild my immune system and overall good health.
There is no sure identification or cure yet. If there was, the over one million sufferers in the US would jump on it in a heartbeat.
I would stand on my head for 3 days if this was the cure. Treatments can give temporary relief, but no cure.
I await the day the CDC takes this issue seriously, however I may not see it due to the health costs.
Thank you kindly for your response. I will check out the book anyway, because all knowledge is helpful.
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