Introducing NDT regime : Hello again. I now have... - Thyroid UK

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Introducing NDT regime

cwill profile image
5 Replies

Hello again. I now have a private prescription for NDT and it is on order. Currently on 100mg levothyroxin and have posted recent results on here so pretty much all set. I have a thermometer and blood pressure monitor that I have been using to ensure that I know my baseline readings before the switch. My doctor suggested I start at 1/2 grain and I understand that I should increase in 1/4 grain increments every two weeks. Are there any exceptions to this regime bar my reaction to the initial dose? It seems like a huge leap into the unknown. Currently bed-based with CFS/ME and dependent on carers so don't have much wiggle room with my symptoms but starting the experiment with hope.

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cwill
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Clutter profile image
Clutter

Cwill,

1 grain is equivalent to 75-100mcg. I would start at 1 grain split into 2 doses and increase in 1/4 grain increments at 2 week intervals until symptoms resolve or you are taking 2 grains. Hold for 6 weeks and have a FT3 test before increasing further.

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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

cwill profile image
cwill in reply toClutter

That sounds more sensible to me - wasn't sure why my doctor advised 1/2 gain but I think that caution is a bit overdone for those of us that have been medicated for years. Thanks.

cwill profile image
cwill in reply tocwill

Clutter I realise that I can't remember the advice for NDT: is it on an empty stomach as T4, so at 5am and 5 pm for example?

SlowDragon profile image
SlowDragonAdministrator

I see you have raised antibodies, so have Hashimoto's. Have you tried, or are you currently on gluten free diet?

cwill profile image
cwill in reply toSlowDragon

Yep for over 8 years and very strict. Doing AIP at present. I found that I couldn't reintroduce anything but am antibiotics at present for gut infection - possibly been there for the whole time or more too. I'm hoping that this is the beginning of the end of the long haul.

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