So in desperation having tried all suggestions and looking around this and the PA forum I emailed Dr Chandry to see if he though my problems could be B12 related.
At 8.30 last night he called me as reading my history he really thought he could help me. After a good 30 minuets going through my history and although I have had a “normal”(yeh yeh I know!) short synacthen test he seems to think I could have secondary adrenal failure as my 9am cortisol was 268 and I actually only got to just over 550 after the 60 minuets.
He’s sending me a list of tests he’d like done. I’m pretty sure I’ve already got results for over the last few months so hopefully won’t need repeats but what’s 1 more blood test!
I’ve read a lot of very good things about him and wondered if anyone else had been helped by him? I really don’t want to get my hopes up that he’ll find an answer but I’m now getting desperate.
If you have was your own gp ok about it? Mine is now at a loss at what to do with me but I have a very good gp and don’t want to risk the good relationship we have x