Graves: Hi I think I have Graves' disease? TSH... - Thyroid UK

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Redvelvet profile image
13 Replies

Hi I think I have Graves' disease?

TSH 0.03 (0.2 - 4.2)

Free T4 22.7 (12 - 22)

Free T3 4.8 (3.1 - 6.8)

Thanks for advice

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Redvelvet profile image
Redvelvet
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13 Replies
Hypo88 profile image
Hypo88

them levels are copacetic , you don’t need drugs

Redvelvet profile image
Redvelvet in reply toHypo88

Ok thanks I just don't understand why I have result like this with hypo symptoms and taking levo?

Hypo88 profile image
Hypo88 in reply toRedvelvet

didn’t know you were on levo, maybe try NDT? How come you started levo ton begin with

Redvelvet profile image
Redvelvet in reply toHypo88

I had results of

TSH 68.5 0.2 - 4.2)

Free T4 10.3 (12 - 22)

Then started on levo

Hypo88 profile image
Hypo88 in reply toRedvelvet

Ooh ok, don’t think that’s ‘graves’ with a TSH like that. Do you feel better now yor TSH is within range

Redvelvet profile image
Redvelvet in reply toHypo88

Thanks no I feel really poorly list of symptoms is below

Hard stool

Goitre

Lumpy feeling in throat

Sweats

Tremor

Jelly like feeling in legs

Weight loss

Losing hair

Hypo88 profile image
Hypo88 in reply toRedvelvet

Seems like you could do with cutting back on levo abit , what dose you on atm

Redvelvet profile image
Redvelvet in reply toHypo88

100mcg

Hypo88 profile image
Hypo88

I’d be inclined to drop to 75 if I were you and see if that straightens you out a bit

startagaingirl profile image
startagaingirl

Hi - I wouldn't be inclined to drop dose just yet. No you don't have Graves but it looks like you may wells have Hashis. To prove this you would need tests for TpoAb and TgAb.

Your conversion rate from ft4 to ft3 isn't great and that would suggest that you may have nutrient deficiencies, These are almost universal with hypo and especially Hashis. If you don't have test results for vit d, vit b12, folate and ferritin, I would suggest you ask GP to do these along with anti-bodies. If they won't the many of us use private home testing with Medichecks (thyroid ultravit is comprehensive) or Blue Horizon (thyroid plus 11).

Deficiencies in these as well as low ft3 could cause most of the symptoms you are quoting. Symptoms are not always clear-cut between under and over medicated.

Gillian

Redvelvet profile image
Redvelvet in reply tostartagaingirl

TPO antibody 279 (<34)

TG antibody 388.3 (<115)

I'm guessing Hashis?

startagaingirl profile image
startagaingirl in reply toRedvelvet

Yes you are correct. All the more reason to get those nutrient results as gut damage causes all sorts of issues. The issue usually underlying Hashis is an intolerance of gluten, sometimes also dairy and soy, causing gut damage with consequent leaky gut and an irritated immune system which then goes on to mistakenly attack the thyroid. After an attack, dying cells dump their hormone into the system giving the appearance of temporary hyper. (see your result of high tsh with high ft3 as an example as tsh is slower to adjust). But this quickly goes and leaves you more hypo as now less thyroid tissue to produce hormone.

At least a 3 month trial of a strict gluten free diet is always recommended as approx 80% have this gluten intolerance - even if negative for coeliac. Selenium supplement can also help.

Gillian

greygoose profile image
greygoose

You would never have been prescribed levo if you have Grave's. Grave's is the over-production of thyroid hormone by the thyroid gland. Your TSH may be low but that's irrelevant. However, you're rather a poor converter, because your FT4 is high compared to your FT3.

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