Specifically someone a Doctor willing to give T3 in addition to T4 medication.
Thanks
Specifically someone a Doctor willing to give T3 in addition to T4 medication.
Thanks
If you email louise.roberts@thyroiduk.org.uk who has a list of Endocrinologists/doctors who are sympathetic. Just a reminder - if the doctor prescribes the only licenced T3 in the Uk, it is more than £250 per month.
You can try to source your own which would be cheaper. You can put up a new post asking for a private message to be sent to you re T3.
Don’t know whether one can name anyone on this forum publicly but I have used a private Endo recently & still under his care. He is very sympathetic & works out of BMI Park Hospital & also Spire Nottingham. He only does private work but you could ask for a referral if you have insurance or willing to pay. I can pm the name . Also as I’m quite new to the game I don’t know if he will prescribe T3. Haven’t asked as I don’t know if I need it.
Camomile1,
You can't name doctors on the forum but you can send feedback in a private message to Chris_Corrigan.
To send a private message: support.healthunlocked.com/...
Hi Chris
I have recently seen a “thyroid friendly “ endo privately. He has appointments in Derby, Nottingham, Lincoln.
However he will not prescribe T3 if he doesn’t feel it is the correct thing to do for the patient. He looks for cause of problems in deciding what is best for the patient. No doubt he will prescribe T3 if he feels it’s what is best for the patient. I know someone he has prescribed it for as it was the right thing for her.
In my case T3 would be dangerous because he suspects adrenal fatigue (or cortisol insufficiency) and am having tests to see what’s happening at that level then a decision will be made, further tests might be required. If you would like the name of this endo please PM me.
Hi JGBH & Chris
I think I am also seeing the same Consultant as I am paying privately and I have seen him at the BMI in Lincoln and also the Spire in Nottingham and as you have said has appointments in Derby as well.
When you put in your reply to Chris about "he looks for the cause of the problem first before prescribing anything". You are spot on, but, this is getting me frustrated as I still feel like a bag of old rusty nails. I am going back to see him soon, but I ended up paying for private bloods and a scan as I felt we just wasn't progressing fast enough for me.
The return visit is to discuss my private blood results and scan so hopefully we can make progress now.
Have you been happy with the end result?.
Best Wishes
Hi peanut31
I have just seen him last Wednesday and am about to begin a series of tests so do not have any results just yet. Once I get the results he wil be able to assess what the cause of my three year misery is... I hope.
Until I get the results there is nothig that can be done. I was impressed that he did not push for T3 (I was keen to try a combo of T4 and T3 (having been on Levo since 1980) becaue my life has been an absolute misery for the past 3 years.
Taking T3 when there is cortisol insufficiency is a dangerous thing to do. A decision will be made after test results. One has to be patient... After all my GP has done absolutely nothing for me in 3 years of seeing her every month!!!! I wish I had found about him earlier on, naturally but when one feels so ill it is difficult to push all the time in order to find a way forward.
However I will wait and see how good this consultant is for me before I make a decision about his ability to help. I have had very good reports about him from many people who have seen him and feel better. We need to be aware that dealing with thyroid dysfunctions is not easy at all and it might not be fixed totally... some bad days and hopefully many better ones too.
Sorry you're feeling so unwell. How long have you been seeing him for?
Good luck with your test results at your next visit. Please let me know how you get on. You can PM me if you prefer.
Doctors in the UK, will not prescribe T3. Especially recently when it as been withdrawn altogether. It was also raised exorbitantly around £250 per month.
Research has shown that most who don't get better on levothyroxine, improve with a T4/T3 combination.
If any doctor doesn't test your Free T4 and Free T3, I doubt they now very much. You can read on the following link why FT4 and FT3 are very important tests but rarely done in the NHS, it seems to me.
thyroiduk.org.uk/tuk/testin...
Usually if hypo, prescribed thyroid hormones and have clinical symptoms the dose usually needs adjusting until TSH is 1 or lower. Many doctors believe 'somewhere' in range we're on sufficient but we probably are not.
Peanut31
Indeed NHS doctors in the UK do not prescribe T3! However private endos will and do if it proves necessary.
Incidentally I had my FT4 FT3 (as well as the usual THS, etc.) tested by NHS. So the private endo I saw had all my results at hand as well as a list of all supplements I take as well as medicines.
He wants to check a few things before prescribing which is very wise and I appreciate his attitude. He's cautious as more harm than good could be done by prescribing T3 when there is an underlined condition which needs to be identified and treated first, then the precription of T3 may be recommended if necessary.
Iin the case of adrenal insufficiency it is not recommended to take T3 as the adrenals need to recover first, which will take time. If there is an adrenal imbalance then the energy levels can drop to an incredible depth and one feels very ill, as I do. Once this imbalance is rectified energy levels should rise, one hopes. It is wise to take things one ting at the time and keep an eye on TSH, FT4, FT3, etc... I know this endo will prescribe T3 if necessary once the underlined condition has been identified and treated. This consultant, unlike the majority of NHS endos (and GPs) knows "his stuff" and has a thorough and cautious approach. Patience is required....
Of course, when feeling so unwell we all want results straight away, that' s understandable. But it is important to realise that improvement will take time, after all it took a long time for the endocrine system to deteriorate and then break down.
So I keep my fingers crossed and will undergo a series of tests he recommended. He actually wrote to my GP for the tests to be done by the NHS as he said private test results can be flawed and are not recorded in our medical records as most GPs dismiss them and there is no record for doctors to look at in an emergency.
He was very attentive and listened to my symptoms as well as read my detailed notes. it's the first time I felt a doctor was actually listening to the patient and noting the symptoms. So am keeping my fingers crossed. I know I, like most people will not get any help from NHS endos... This consultant is on the "thyroid friendly" list provided by Louise. I have done my best as I am so fed up with feeling so incapacitated and having no help from doctors.... like the majority of us on this forum.
Looks like the same guy. Nice enough chap & quite right to insist on treatments being right for the individual (wouldn’t expect anything less esp when you’re paying through the nose)
Shaws - his name is on Louise’s list for the Nottingham area. Our GPs don’t like him because he is thorough, knows his stuff & “shows up “ just how inept they are. Sorry but I haven’t much faith in our GP practice anymore. Sad really!