Hi everyone, I’m wondering if anyone has any ideas on my daughter’s situation and symptoms!
My adult daughter has had Hashimoto’s for the last thirteen months. Her levo was increased from 100mg to 125mg at the end of April in an attempt to improve her energy levels, and at the end of May she started to have intermittent double vision (and a brief “sticking” eyeball sensation) on looking upwards. She went to the optician, who told her it was a V phenomenon because she was tired. After a while it seemed to go away, but by the beginning of September she was getting double vision looking down instead and painful eye muscles, and it recently got worse.
We experimented with reducing the levo dose intermittently, and it seemed to get better when the dose was lower. We have now reduced to 100mg for 6 days, and the lower eye symptoms went away fairly quickly – though then the upper eye symptoms came back (but are possibly lessening, not confusing at all(!)). However, she is now exhausted. Perhaps we have reduced the dose too much?
She has been supplementing with ferrous fumarate 2-3 tablets per day for the last 4 weeks, and I would hope her ferritin has improved despite a heavy period. Other issues include a high RT3 and a raised salivary cortisol (though the latter was taken on a stressful day). We will shortly repeat the bloods and saliva tests.
I’m not sure what’s going on, and any advice would be welcome! We plan to see our GP and probably an endocrinologist (but will seek advice about the endo in a separate post).
Here is a copy of the last bloods (taken pre-dose):
Ferritin 50 ug/L (13 – 150)
Total Thyroxine (T4) 100 nmol/L (59 – 154)
TSH 0.01 mIU/L (0.27 - 4.2)
Free Thyroxine 19.2 pmol/l (12.0 - 22.0)
Free T3 4.3 pmol/L (3.1 - 6.8)
25 OH Vitamin D 80 nmol/L 50 - 200
Thyroid Peroxidase Antibodies 95.0 IU/mL (0 – 34)
Reverse T3 31 ng/dL (10 – 24)
(B12, Folate and CRP all normal)
PS my daughter has had to re-write this post as I lost it lol!