I'm very new to all of this and only been diagnosed 'officially' with auto immune thyroiditis a few weeks ago. My story of confusion begins a few years ago when during a pre operation assessment(for something not relating to thyroid) revealed a TSH level of 20 and hospital referred me back to GP.
Upon taking the Levo doc started me on I started to get symptoms not experienced before like bloating, more irratible and angrier than usual and some weight gain, bit tired and such. Called doc to advise something was up and was told nothing wrong and to just carry on. I continued like that with odd symptoms that came and went while some persisted and got gradually worse until several months ago when I started thinking why is my body doing what its doing and I feel worse now with more symptoms than I started with before the medication. I had several days where I was displaying more symptoms than usual, even moving hurt and I went to docs.
while waiting for my appointment I started researching online trying to find any information to suggest I was missing something or doing something wrong. I'm not the healthiest of people but I do want to change that.
I thought I was doing good in trying to help myself online through reading some medical research, charity websites and other material but the reaction I got was not expected at all. The doctors do not like this in my surgery and all the staff including the hospital seem to get so twitchy about giving me my personal data or anything that educates me in looking after myself properly(other than taking pills. Surely there's something I can do to help myself in addition to taking the tablets.
I have had to be very forceful with GP surgery staff and hospital staff to get exact test results but I have them and a diagnosis of auto immune thyroiditis, not sure what that means though, the doctor seemed to be unable to explain anything other than the usual thing any doctors do when talking to me about my thyroid.
Doc has tried to suggest I have fibromyalgia when complaining of still having hypothyroid symptoms several nurses over the past year have said taking mini pill/shaving is causing skin problems but I don't take it anymore, stopped shaving and it was still getting worse getting fed up I asked for formal diagnosis for what was causing the problem with thyroid.
All my lab results came back as 'normal' only one that came back as above range was the thyroid antibody test which led to the auto immune thyroiditis diagnosis. Is this the same thing as hashimoto? She seemed to get flustered when I started asking questions and just kept referring to taking levo. It was quite a bizarre telephone conversation.
So this is where I'm at now.
My TSH level 4 months ago was almost at the upper range, I have just taken another test and it's almost at the lower range, still have symptoms and my thyroid antibody test is above range. Is my TSH low right now because my thyroid is being or has recently been attacked and there is more T4/T3 in blood from the thyroid damage so pituitary knows not to stimulate thyroid by producing more TSH? I can't tell how much T4 or T3 is present because my GP doesn't test me for this.
Also gluten, does this trigger an immune response that may be causing the fluctuations in my readings and symptoms? I am about to go gluten free after reading about the benefits so just curious to know anyone's opinion on this and on the possibility of thyroid being mistaken for gluten by immune system in triggered response? I saw something on leaky gut and found it really interesting.
Lastly I know it is a long post so thanks for reading and any help is always welcome.