However, there are 63,911 members on this forum and yet the petition has been signed by just over 22,000 people.
One would wonder whether we are asking people to sign their souls away! (hence the picture).
There are so many of us here who are begging for help, for advice, for contact details of T3 and ndt suppliers, and spend time moaning and complaining about difficulties with diagnosis, unnaceptably low standards of thyroid treatment and arrogant attitudes of doctors.
I understand that many of us are very unwell. I also understand that many of us have improved, are getting on with their lives and rarely visit this forum. However, I am feeling frustrated by rather poor response from the members of HU community.
We are NOT asking you to sign and share this petition for me, nor for Pamela0106 , UrsaP or Kitti1 . We are NOT asking you to sigh it for any of the ITT members. Most of us are well or are in the process of getting well...that's why we have the energy and motivation to want to change things.
Please sign it FOR YOURSELF, for your relatives with thyroid disorders, for your friends, for other people who are experiencing inadequate thyroid treatment and who WILL experience it for years to come...unless we do something about it.
People who live in Scotland, Northern Ireland and Wales: there is no country in the UK, where the treatment of thyroid disorders would be close to acceptable. If we allow this situation to deteriorate (e.g. T3 withdrawal in England) it will become almost impossible to go back to the previous state (never mind improve it).
iF you've signed the petition or shared it, PLEASE WRITE "SIGNED" OR "SHARED". Thank you!
mischa , Quokka , amala57 , Helena877 , smudger1 , Rac73 : BIG THANK YOU for liking this post. If you've signed it or shared it, please write "Signed" or "Shared". One reason: I want this post to stay visible THANK YOU!
Signed and shared. US here, but will prompt my friend Jean in Ireland, and another friend Mick in England. Shared on Twitter I'll on Facebook as well. This is so very important and only takes a few minutes or less! 🦋💕
Please sign and share for those of us who had our Levothyroxine changed to a generic one and have had very much worse health since then. For my son and me that has been for the past 7 years. We will only be left with Levothyroxine if we let T3 just fade away, and Levothyroxine has deteriorated over the past 7 years or more. please sign and share.
Massive spike in signs today - 20k milestone achieved and still growing! Fabulous. X #TUK #ITT
Signed shared and happily tweeting my socks off.
As a relative newbie I'm still on levo and so far I feel good, now that my dose has been increased. But I know that may very well change as time goes by.
Since I joined the forum I've learnt from the wonderful generous people on here that they too were once good on levo. So to me this campaign is about ensuring everyone can have better treatment including T3 and NDT if they need it.
If you've just joined your voice is just as important. So please sign, from the link up there or down here😁
SolsticeSS - I do have a Twitter account but rarely use it. The few tweets I have done, I never get a reply. I think I'm doing something wrong. Any advice please
Hi Marigold, get back into it and join in😁, the more the better.
I'm @SolsticeSShypo ITT campaign is @campaign_itt TUK is @thyroiduk_org
The idea is to get the messages spread through people that 'follow' you. You can retweet RT any of our messages. I joined it purely to support the campaign. The more you use it the easier it gets, but it's less about 'chatting' though that still happens. Have another go😊 see you there😉 x.
Come on, people! You can have a boob job on the NHS and get Viagra, but we can't get a drug that not only keeps us alive, but prevents us having to use the stretched resources of the NHS in other areas. I'd love to be able to quantify what the prescribing of T3 could save from the mental health, cardio and endocrinology budgets, or even general down time in a GP surgery. Is anyone knowledgeable enough to take a stab at this? It seems that the only way to get through to the decision makers would be with cost saving figures.
And yes, I agree: financial argument would be the strongest argument. Instead of talking to endos and GPs perhaps we should convince financial directors of the NHS and influential economists.
There was an IAPT initiative on the NHS started over 10 years ago. The idea was to increase an access to psychological therapies. IAPT received huge funding from the NHS because an economist, Lord Richard Layard, provided a report in which he argued that if people with depression and anxiety received treatment it would save the UK economy a lot of money:
Yes - quite seriously members on this site need to pull their finger out. It's alright popping in an utilising the valuable knowledge shared. Time to give back now - and here's your chance.
Regular contributors can go into their healthunlocked name, click on People Near Me, make sure you click on Thyroid section, you will then get members who live within a certain distance to you. Go through them one by one, check that they haven't contributed for at least one month; also look at their Replies as they may have been on the forum recently. Then PM them the message I have written
I hope you don’t mind me contacting you via Private Message on the Thyroid section of healthunlocked.com.
I have found you by putting in ‘people near me’ so you are within 25 miles of me.
You may not have looked at healthunlocked Thyroid lately, so you may not know about the massive campaign called ITT (Improve Thyroid Treatment).
Thyroid UK and the Thyroid section are being inundated with newbies desperate for help and advice; there are also many who have suffered for many years. Some have managed to get their good health back with the help of healthunlocked.
Please click on the link below and sign the petition. Also please share it with as many family, friends, work colleagues etc as possible, asking them to share it also. If you are on Facebook, please add the link. Many thanks.
Yes, I know we don't know how many members are still active...we just hope they are still out there and check their accounts, at least occassionally.
It's reassuring that TUK petition with over 10k signatures gained a gov response BUT there more signatures this one gets then higher the likelihood that it will be noticed and discussed. Let's hope for the best but prepare for the worst...
Signed & shared loads & also in Canada at the mo 😋 keep up the great work Kitti & everyone else working so very hard on the ITT Campaign 😊 Together we can do ITT, Together we can WIN 😊
I hate to tell you but nobody's T3 is safe. Some people have already had their T3 withdrawn in Scotland. Pamela0106 had to fight to have hers reinstated. It's only a matter of tiem before Wales and NI are affected... ;(
I cannot tell you how many letters, complaints and appointments and MP intervention it took for me to get mine reinstated and even then it's still at risk of being taken away again. 😩
Thyroid disorders are pain in the ass but most of us suffer because we are not diagnosed on time and then poorly treated. It wouldn't be so bloody difficult if we receiving the care we all deserve!
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