Newbie with blue horizon results: *Thyroid... - Thyroid UK

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Newbie with blue horizon results

Mally5 profile image
15 Replies

*Thyroid peroxidase antibodies 276.5 (0 - 34 negative)

*Thyroglobulin antibodies 245.3 (0 - 115 negative)

TSH 3.89 (0.2 - 4.2)

Free T4 13.1 (12.0 - 22.0)

Free T3 3.5 (3.1 - 6.8)

Taking 25mcg levothyroxine diagnosed 2011.

I am feeling undermedicated.

Thankyou

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Mally5 profile image
Mally5
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SeasideSusie profile image
SeasideSusieRemembering

Have you always been on 25mcg since diagnosis, or has dose been changed? If so why?

Mally5 profile image
Mally5 in reply toSeasideSusie

Thankyou I had dose changed recently and I think I had it reduced by too much. Dose was changed because of below range TSH

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

You reduced the dose or GP, and why?

Mally5 profile image
Mally5 in reply toSeasideSusie

GP reduced it due to below range TSH

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

What dose were you on before it was reduced to 25mcg?

What were your test results, with reference ranges?

Mally5 profile image
Mally5 in reply toSeasideSusie

*TSH 0.08 (0.2 - 4.2)

*Free T4 22.5 (12 - 22)

Free T3 4.7 (3.1 - 6.8)

Taking 100mcg levothyroxine and 10mcg t3

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

So you've got a jerk for a doctor (I've run out of patience with these doctors who know so little about thyroid).

Did you know that your high antibodies mean that you have autoimmune thyroid disease aka Hashimoto's, which is where the antibodies attack and gradually destroy the thyroid? The antibody attacks cause fluctuations in symptoms and test results. You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Also, supplementing with selenium L-selenomethionine 200mcg daily and keeping TSH suppressed can help reduce them.

Read, learn and help yourself because your doctor probably won't know and they often dismiss antibodies as being of no importance:

chriskresser.com/the-gluten...

hypothyroidmom.com/hashimot...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

**

You didn't need your thyroid meds reduced so drastically. In fact, reductions should be made gradually (like increases) by 25mcg Levo at a time.

You may not have needed them reduced at all. Did you have symptoms of being over medicated or was it your GP just panicking because of your suppressed TSH.

Once on thyroid meds, TSH is irrelevant. It's not a thyroid hormone, it's a pituitary hormone. The pituitary is detecting that there is enough thyroid hormone available so it doesn't send a signal to the thyroid (TSH - Thyroid Stimulating Hormone is that signal) so your TSH level is low.

As you are on T3, the endo who prescribed it ought to know that T3 generally lowers or suppresses TSH. FT4 generally is lower in it's range when taking a Levo/T3 combo and as your FT4 was slightly over range then a reduction of 25mcg in your Levo would have been enough. In fact, your FT3 is quite low for someone taking T3. It really ought to be near the top of the range.

Mally5 profile image
Mally5 in reply toSeasideSusie

Thankyou

I did not know I have hashimotos no one in the family has it

I didn't have symptoms of over medication at the time they were and still are ones like memory loss confusion lack of concentration dry eyes tiredness aches and pains muscle twitches constipation heavy periods hair loss

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

You still have hypo symptoms because your FT3 is too low in it's range. T3 is the active hormone which every cell in our body needs. Most of us need it nearer the top of the range, with your range that would be about 5.9ish (if that is where you feel well). And considering you're taking T3 yours is far too low.

The most sensible thing would be to lower your Levo by 25mcg and add an extra 5mcg T3 and see how that goes, with further adjustment of necessary. But it's important to know that the TSH will most likely stay suppressed purely because you're taking T3.

It would be an idea to have the following tested if not already done, as low levels can cause some of the symptoms you mention

Vit D

B12

Folate

Ferritin

Mally5 profile image
Mally5 in reply toSeasideSusie

Thankyou do I go straight back into taking the 100mcg levothyroxine and 10mcg T3? Will post other results now

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

How long have you been on just 25mcg? You might need to increase gradually. Have you got enough supply? Prepare for your GP to spontaneously combust when he finds out!

Mally5 profile image
Mally5 in reply toSeasideSusie

I have been on the 25mcg for over a week and I have got about 2 months supply of T3 left

SeasideSusie profile image
SeasideSusieRemembering in reply toMally5

That's not too long to be on the reduced dose. Can you contact the endo and tell him what your GP has done about reducing your dose and ask for guidance to increase?

If not and you want to be cautious you could increase to 50mcg now, after a couple of weeks maybe add the T3 back in and see how you feel. You could then wait 6 weeks and retest to see where your levels are and make any further adjustments that may be necessary.

Bear in mind I am not medically trained so this is not advice, but it's what I would do in your position (I take prescribed Levo and self sourced T3).

Mally5 profile image
Mally5 in reply toSeasideSusie

Hi my endo has agreed to the reduction regardless of how well I felt. I think I should be seeing another endo or get my own T3 thanks

SlowDragon profile image
SlowDragonAdministrator

Read up as much as possible about Hashimoto's

See lots of my recent replies to other posts

Medics ignore it, they don't understand the gut connection, but to feel better we need to sort it

You probably need to try strictly gluten free diet.

thyroidpharmacist.com/artic...

Highly likely you have low vitamin levels

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