Hi, I'm new here, glad to have found this place. My sympathies to everyone else suffering with a thyroid problem. I'm hoping someone might be able to help me figure out what is going on with me.
I was diagnosed with possible Graves' Disease in March. Free T4 was 41 (range 10-24) and TSH was 0.02. My TPO was over 800. I felt very ill, all the classic hyper symptoms. But no goitre, swelling or neck pain at all.
I was given Carbimazole which made me hypothyroid very quickly. Within only three weeks TSH was 50 and T4 down to 5! But I felt so much better, back to normal.
I was taken off Carbimazole. Felt great for a couple of months but in the last month some bad symptoms are coming back: horrible muscle weakness, muscle tics, breathlessness on exertion, a feeling of doom and anxiety every morning, and almost a poisoned feeling some days. But my bloods are stable low normal range for the last three months! TSH has come right down again and averaging 3 (a bit high but in the normal range) and my T4 is about 13. My T3 is 4.8 (range 4-8.3).
The endocrinologist is now hazarding a new guess that I have 'thyroiditis' not Graves. I don't know which kind. I asked why I had new symptoms when bloods remain low normal but didn't really get an answer to that . Do they sound hypo to anyone reading this?
Then I asked if I could have thyroxine to take me higher into the normal range because I am now feeling so weak and horrid. I was told no, because if this is a self-resolving thyroiditis, I might end up on thyroxine for life when I don't need to be, because the thyroid will stop working or something. Is this true?? Should people with a transient thyroiditis not have thyroxine for temporary help?
I'm not convinced it is transient anyway, great though that would be.
Could my symptoms be related to a different hormone going out of whack? I am going to be tested for cortisol if I don't improve in a fortnight. I always feel worst in the morning and somewhat better (though still weak and wobbly) as the day goes on. Does anybody else have similar?
I have an open appointment to return to the endocrinology dept so I'm not abandoned or anything, but I am basically being told to wait it out in case things resolve on their own (no timescale given!) But I don't want to wait it out feeling awful if thyroxine would help now. In summary: am I belatedly feeling 'hypo', can transient thyroiditis be treated with thyroxine, and should I pursue thyroxine?
Sorry for the essay.