I started out severely hyperthyroid last year, managed to get better on the initial 40mg Carbimazole, after that was on different levels of Carbimazole but either too much or too little. About 3 months ago I went hyper again and it made my TED (Thyroid Eye Disease) much worse (blood results below). I felt the endocrinologist wasn't listening - so wrote a paper letter (only way to get in contact with them?!). Had a call back from another Endo who said she'd like me to try Block & Replace which I was happy to do. Felt it must be easier to control my symptoms and desperate to not make my TED any worse.
I have been on B&/R for about 6 weeks 40mg Carbimazole and 50mcg Levothyroxine, but feel I am getting very lethargic, sluggish and seem to gain weight (hypo symptoms?), but at the same time - I now can't sleep and I seem to be loosing hair (hyper symptoms?) but don't have any of the other hyper symptoms I used to have (hot, fast heartbeat etc.) So my questions are:
- is it possible to have both hyper and hypo symptoms in one go?
- will an increase in Levo help the lethargic symptoms?
- how much medication are people on B&R generally taking, as I hear some take more than the 50mcg Levo.
Any thoughts welcome before I speak to the Endo on Wednesday...
Feb: TSH 1.77 - T4 16
Mar: TSH <0.02 - T4 30
Apr: TSH 0.09 - T4 17
May: TSH 0.18 - T4 21
and thank you so much for this forum, it's so helpful.