London event to make your views known in person to NHS England - Sept 5th

[SlowDragon]

A face-to-face event for members of the public to make views known about proposal to remove T3 (Liothyronine) from prescription list (amongst other things)

events.england.nhs.uk/event...

[SeasideSusie Remembering]

Gosh, what wouldn't I give to be there. I do hope some members can attend and they post about how the meeting goes.

[SlowDragon Administrator in reply to SeasideSusie]

Already booked my ticket 😀

[SeasideSusie Remembering in reply to SlowDragon]

Oooh, please do report back

[Songbird1960 in reply to SlowDragon]

Me, too

[Shelley1954 in reply to SeasideSusie]

There is also a webinar you can book into.

[shaws]

I would love to be there but cannot and hopefully quite a few members will be able to attend to put forward our worries about T3 being withdrawn and already withdrawn to quite a few members.

It's not the Endocrinologists who should be the ones to decide what thyroid hormone suits but a sick patient who is even worse on levothyroxine but well with the addition of T3 (for many) or T3 only for some.

We are dealing with replacement hormones and the majority are females whilst Endocrinolgy is mainly male and those who would prescribe other than levothyroxine have bee prevented from doing so.

The healthy thyroid gland produces three hormones:

Triiodothyronine or T3.

Tetraiodothyronine, also called thyroxine, or T4.

Calcitonin.

So why are the Endocrinology insisting that T4 only suits every single hypothyroid patient?

You can give them some Research that shows T4/T3 is more beneficial than T4 alone.

This whole article, particularly page 80 on left-hand top para.

tpauk.com/images/docs/reduc...

I should think Thyroiduk.org.uk also have papers/research regarding T3 and also that some have a deficiency that they cannot convert T4 at all..

Bearing in mind the Endocrinology also withdrew NDT which had been in use in various forms since 1892 by making False Statements and which many patients were also taking and forcing NHS patients to buy their own thyroid hormone replacements.

thyroidscience.com/Criticis...

Despite three reminders to the BTA and RCoP - none responded regarding the withdrawal of NDT. So our wide variety of options has been reduced to one only - T4 only.