Thyroid treatment petition: Hello folks, I'm not... - Thyroid UK

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Thyroid treatment petition

kittenmittens
kittenmittens

Hello folks,

I'm not sure if anyone else has posted this, so apologies if they have, but I came across this petition on Change.org which is about thyroid problems diagnosis and treatment, including T3 treatment, and I thought members here might be interested in signing it.

change.org/p/itt-campaign-g...

4 Replies
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Hi kittenmittens

This has been posted before but I know Kitti who started itt with others helping from this forum wants as many people as possible to sign petition as we need 100,000 signatures, this petition is to stop government from unprescribing t3.l last count we had 5,500 signatures in two weeks so a good start but still a long way to go, so if you haven't signed yet please do so. Itt is more than just about T3 though it stands for improve thyroid treatment and we want that across the board to getting diagnosed earlier and being able to have NDT or t3 if needed on prescription and being listened to by our doctors as well as better education for the gp's so they know how to treat the thyroid.

Sorry this is a bit of a long post but as you can see I'm quite passionate about this .

Yes, I agree with everything in the petition, also passionately! I personally had trouble getting diagnosed and getting treatment with T3, and have experienced the problems with GP's and Endocrinologists that so many people with thyroid problems experience. I have signed it and shared it on my Facebook with an explanation of why it is important to me, and urging people to sign it, and hopefully, it'll get support.

Copied onto FB and Twitter too. W e MUST succeed!!

Sorry about the long post but it may help with Hasimotos, I get theses updates from an American Dr..........I can stop posting if OTT.

When I first set out to figure out the root cause of my Hashimoto’s, I took an inventory of all of my symptoms, in an effort to find an underlying connection. (I highly suggest that you make your own health timeline to help guide you as well).

Here's a brief overview of my health history:

My health troubles started during my freshman year in undergrad, after catching “mono”, a common viral infection that is caused by the Epstein-Barr virus. Prior to this infection, I was a really bright eyed, bushy-tailed and energetic young woman.

The summer before I started college, I would wake up at 5:30am or 6am each morning so that I could go to the gym, before starting work at 8 or 9am in the pharmacy. I loved my job as a pharmacy technician, learning about the body and medications, and couldn’t wait to start my studies to become a pharmacist! I worked full time in the pharmacy, and spent each evening studying for the pharmacy technician certification. I was proud to be the youngest person in Illinois to become a certified pharmacy technician, even before starting college. I loved learning and being out in the world!

But all of that changed during my second semester in college. I became chronically exhausted. I often slept through my morning classes, and sometimes even slept through lunch and dinner. I once even slept through a mid-term exam. I found myself with a strange brain fog that made studying and even socializing a huge effort.

Needless to say, I didn’t do too well in college that semester. I came home the following summer feeling defeated. My parents were also really concerned as I was a shell of my former self. I slept until 2pm each day, was moody, and lost so much weight, people suspected that I had an eating disorder.

After much rest, I got somewhat better at the end of the summer, and went back to college. I focused all of my limited energy on my studies, and was eventually able to improve my GPA to be accepted into a competitive doctor of pharmacy program. While I never returned to my previous levels of energy, I learned to be more efficient, compensate and made sacrifices which allowed me to succeed in all of my classes.

A few years later, while in my first year of pharmacy school, I developed irritable bowel syndrome. A few years after that, anxiety attacks, acid reflux, allergies and hives. A year or so after, I began to experience acid brain fog, hair loss and joint pain. The fatigue persisted. A year later, I was diagnosed with Hashimoto’s.

Once I had the diagnosis, I began to spend a lot of time on research, as well as self-reflection and self-experimentation in an effort to overcome Hashimoto’s. My symptoms and research kept leading me back to the gut…

I learned about the gut and autoimmune thyroid connection after reading the work of Dr. Alessio Fasano (my article on his work HERE). He has found that in order for autoimmune disease to develop, in addition to genes, a trigger and a leaky gut barrier must be present. Healing the leaky gut can put the autoimmune condition into remission. I eventually uncovered my personal leaky gut root causes and set out to educate people with thyroid disease about how to uncover theirs, in my Hashimoto's patient guide.

I learned that I not only had food sensitivities and a lack of beneficial bacteria, but I also had gut infections: small bowel bacterial overgrowth, H Pylori, yeast overgrowth and Blastocystis hominis, a protozoan parasite.

I addressed these root causes, one by one, and saw an improvement in symptoms and reduction in antibodies with each intervention.

In working with clients over the past few years, I’ve noticed some similar patterns, that I’d like to share with you. Please note, these patterns are based on my own research and observations and may not be accepted by conventional physicians.

Hashimoto's, Hives, IBS and Blastocystis Connection

People with Hashimoto’s are more likely to develop the skin condition chronic spontaneous urticaria, also known as chronic hives which is manifested by widespread, itchy and swollen skin rashes. These hives can be very distressful and they can seem to come up randomly. 42 scientific studies have linked Hashimoto's with chronic hives!

People with Hashimoto’s are also more likely to develop irritable bowel syndrome. This condition can manifest as either diarrhea or constipation, and often shows up before the Hashimoto’s diagnosis.

Whenever I work with people with Hashimoto’s, I always recommend gut function testing. By far the most common parasite I’ve found in people with Hashimoto’s is Blastocystis hominis, or "Blasto".

Many conventional physicians have regarded this parasite as a commensal organism (up to 20% of "healthy controls" may have Blasto without any symptoms), and will say that there is no need to treat it, however, multiple studies have implicated in irritable bowel syndrome (IBS) and chronic urticaria (hives), two conditions that are very commonly associated with Hashimoto’s.

Although I have not seen any research studies documenting this, I have found this parasite in a large subset of my clients with Hashimoto’s, especially in those who develop Epstein Barr Virus (EBV) in adulthood, then are “never quite the same”. This could be because EBV and other herpes viruses feed on the amino acid arginine, and thus can cause a depletion of this amino acid which normally suppresses Blastocystis hominis.

Blastocystis and Hives Connection

Blastocystis hominis is a common human intestinal parasite, and it may be present in up to 50% of people in developing countries. A study of 54 people in Egypt with chronic urticaria (hives) revealed that that Blastocystis hominis was found in 61% of them, while only 8% of the healthy controls had the parasite.

This parasite has been found in some asymptomatic carriers and researchers hypothesize that other factors can influence the pathogenicity of this parasite, such as the immune status of the host, parasite load, presence of gut imbalance or other factors that can influence the behavior of parasite.

Researchers have suggested that the amoeboid form of Blastocystis hominis is more infective that the protozoa form and that it can adhere better to gut cells, and interestingly, the Egyptian study found this form in 60.6% of the Blastocystis infected people with hives, while none of the Blastocystis infected controls had this form.

In a letter to the editors of the British Journal of Dermatology, Dr. Tilo Biedermann from the Ludwig-Maximillians University in Munich, Germany reported that urticaria and reactions to NSAIDs subsided after treating 10 subjects infected with Blastocystis with paromomycin 25 mg/kg for 10 days.

Paromomycin is not presently available in the United States, but a drug in the same class, called Alinia (nitazoxanide), an FDA approved antiprotozoal for treating other parasites, has been helpful for eradicating Blastocystis hominis. The parasite has been shown to be highly resistant to Flagyl (metronidazole), the usual drug of choice.

A 2014 study found that almost 25% of people with chronic urticaria had Hashimoto’s, and thyroid suppression by levothyroxine can result in clinical remission of hives, however, I wonder if the medication is just masking the symptoms of the parasite.

Blastocystis and IBS Research Connection

Various studies, using many different methods for parasite identification, have found the prevalence rate of Blastocystis hominis to be between 13 to 73% of people with irritable bowel syndrome. As parasite detection methods are not 100% reliable (with many false negatives), these rates could be even higher. I recommend the GI Pathogen Screen with H. pylori Antigen-BioHealth KIT.

Blasto has been shown to cause dysbiosis and cause leaky gut, which predispose us to autoimmunity!

Much controversy is out about this protozoan. Some studies, namely from Thailand and Mexico suggest that this is a commensal (harmless) organism, thus doctors may be told that there is no need to treat it. However, studies from Europe, Australia and the mid-east have connected this pathogen to irritable bowel syndrome and chronic urticaria (hives), both of which are very common manifestations in the early stages of Hashimoto’s!

Studies have found that Blastocystis species of protozoa do not invade the colonic mucosa, but they do lead to disturbances of the barrier function and increased intestinal permeability, thus Blastocystis has been shown to cause leaky gut. Blastocystis breaks down secretory IgA, the protective barrier and the immune system of its infected host.

Research has found that eradicating Blastocystis in urticaria and IBS often leads to the remission of both conditions. I’ve found that eradicating a Blastocystis infection in a person with Hashimoto’s often leads to a remission of Hashimoto’s, with an improvement in symptoms, a reduction in food sensitivities and a reduction in thyroid antibodies- I've discussed this connection in many of the interviews I've done in the last couple of years, including the Fall 2014 Hashimoto's Institute summit. I was super excited to learn that a new paper has been published in a medical journal, detailing the case of a person who saw a reduction in TSH and thyroid antibodies after the eradication of Blastocystis hominis (read it here).

Eradicating this infection has also helped many of my clients reduce their joint pain, eliminate or reduce their IBS symptoms, reduce their food sensitivities, reduce fatigue and reduce thyroid antibodies.

Treatment

According to the Blastocystis Research Foundation, “Some patients are able to manage symptoms with an extensive exclusion diet, which may include exclusion of refined sugar, wheat, dairy products, rice, corn, carbonated drinks, tea, coffee, alcohol, and fruit.” Blastocystis can also cause carbohydrate intolerance. Sound familiar?

While diet can help to manage symptoms, it will not eradicate the pathogen. This parasite needs to be treated with antiprotozoal medications and/or herbs

I have seen the following protocols for eradicating Blastocystis hominis to work effectively:

Medications

1) triple therapy used in Australia: diloxanide furoate, trimethoprim/sulfamethoxazole and secnidazole*

OR

2) Alinia for three days on, then off for two weeks, repeated twice*

OR

Natural Treatment Options

3) The beneficial yeast Saccharomyces boulardii, taken twice per day for at least 30 days

4) The use of anti parasitic/anti-yeast herbs such as Oil of Oregano and Berberine.

Tips:

The key is to use these treatments long enough, or in a pulsed fashion to fully eradicate Blasto. Blasto can take on four different forms during its life cycle, and some of the forms are resistant to treatment.

*Keep in mind that antiprotozoal medications can lead to a yeast overgrowth, and a treatment with anti-yeast herbs or a medication like Nystatin may be necessary to rebalance the gut.

Removing sensitizing foods and getting probiotics on board will also be very helpful for recovering from Blasto.

Co-Occurring

Often, Blastocystis co-occurs with H Pylori, another potential root cause/trigger of Hashimoto's, some professionals will go as far as to treat a person for both infections when one or the other Is found.

What else causes leaky gut?

I always talk about how switching my diet was the best thing I ever did. It was my first step into the root cause approach to health. I went gluten and dairy free, and this lifestyle change completely eliminated my acid reflux, bloating and irritable bowel syndrome. Within 3 months I no longer had symptoms of carpal tunnel, and saw a reduction in my thyroid antibodies as well. You can read about my articles about acid reflux HERE and dairy HERE.

Some people with Hashimoto's are able to completely reverse their condition just by going gluten and dairy free, and some see no improvement at all. Gluten and dairy are common leaky gut triggers, but there are many others.

If you would like to dig deeper into Hashimoto's, you can check out the 12 week Intensive course I've developed called Hacking Hashimoto's.

Warmly,

Dr. Izabella Wentz, PharmD

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