Just relaxing now after a nervous morning. Dr Toft at least admitted he was wrong in the past about using only the TSH test and I really admire him for that.
I think that my quotes from people who contact us hit home because I was asked to provide them with a list at the end of the discussion.
It was very difficult to bring up all the things we wanted to bring up because you had to get the say so from the convener before you could speak and then the topic changed so it wasn't appropriate to say what you were going to say. Thyroid UK will be sending a further submission in answer to some of the comments from the BTA because we weren't given the opportunity to respond to the comments at the time.
We hope that this is the first of many round-table discussions where Thyroid UK is invited along with patients who don't do well on levothyroxine.
We have been asked to collect patient stories of those who were ill on levothyroxine and became well on the addition of T3, T3 only or NDT. Please send your stories to lyn.mynott@thyroiduk.org Don't make them too long or they won't be read. They are looking for numbers of people with these problems rather than detailed case studies. Please help us with this, particularly if you live in Scotland.
Thanks for all your support and special thanks to the three brave petitioners!