I was very fortunate to get my NDT on an NHS prescription. My lovely GP saw what a difference it made as I got better and decided to prescribe it himself rather than me get a private prescription from my endo.
Unfortunately my GP retired last year but I still managed to request a couple of repeat prescriptions.
In the meantime, my Fitbit had indicated my pulse being a bit fast. As a result I reduced my dose from 2.25 grains a day to 2 grains on 5 days and 2.25 grains on 3 days. This was after being on 2.25 grains for 4 of 5 years feeling pretty well.
I became a bit careless and forgot to take any NDT for a couple of days, seemingly with no ill effect.
However, at the beginning of May I had a headache which carried on for 3 weeks. I eventually went to see the GP who wasn't interested. I requested a thyroid blood test, nog really thinking this would show anything. I had to wait a week for the test and during this time my symptoms worsened with dizziness, vertigo and aching wrists reappearing. I suddenly realised that it was likely to be my thyroid, and when I got my blood test results they were:
FT4 12.1 (12-22)
FT3 3.9 (3.1-6.8)
Interestingly my FT3 and FT4 were bottom of the range and similar to when I first felt ill and wax diagnosed with a thyroid problem 5 years ago.
I decided to see my endo who I hadn't seen for 2 years. He suggested splitting my dose but annoyingly wants to get my TSH higher - usually it's suppressed so I don't think I can feel well if its detectable. He did reluctantly agree for me to go back up to 2.25 grains though.
The following week I tried to get my repeat prescription but have been told it's a "red" drug and can only be prescribed by a consultant. I'm sure this is as a result of my endo writing to the GP and mentioning my heart rate
I have made an appointment to see my new GP on Wednesday, just in case I can do anything to persuade him - very unlikely but worth a try.
The good news is that I'm feeling so much better. I have been back on 2.25 grains for about a month. I'm relieved that I know what was causing my issues but disappointed that I will no longer get the treatment I need from the NHS. I knew my luck was likely to run out st some point though.
P.s - hello to all of my old friends on here x