thanks to all who gave me support when I have been complaining of fatigue and excessive sleepiness. So far this year I have seen an endo who has believed me and looked out of the box and tested for other things, all came back negative. Then I went to a sleep clinic and again negative for sleep apnea but the sleep clinic consultant diagnosed hypersomnia (excessive sleeping up to 18 hours a day I could have told him that ) and wanted to give me a drug similar to amphetamins with lots of awful side effects which I refused. Thinking my gp was right and I have just got to accept this is me and at least I am not in pain.
I was sorting to change from t4 to ndt when my son phoned saying " mum you must watch Doctor in the house series 2episode2 about a man with chronic fatigue, it's just like you".
After many different test the doctor had discovered the man had high homocysteine levels..........I know I am pre dispositions to this as I had a gene test last year when I was put on b12 injections and felt great for 3 months and was suspicious my mum and daughter had b12 problems and wanted answers.
Then by chance the endo phoned me saying as all tests had come back negative he was willing to prescribe ndt....WOW.....but I've not started it yet
I told him about the homocysteine and he said like most doctors he did not know enough about it but thought the b12 injections I was having every 2 months would be enough to get eliminated but it would not hurt to try the extra b vitamins as my body would eliminate excess.
I researched what was taken in program ( he improved after a few days) and started taking a cocktail of b2, b6, b9, and b12 and waited hoping for an improvement.
On the 5 th day I did not sleep at all and now on day 9 I am wide awake for the first time in years.
just hoping it continues.........so happy today that I had to share!