Going Private

I'm officially diagnosed Hypo by NHS. I was on 100mcg Levo, but after I ran a Blue Horizons test, which showed zero increase in FT3 (slight decrease actually) & high Reverse T3, I ditched the Levo.

I recently did a blood test & was summoned to the GP. My TSH was back to 10.17 & he wanted to know why.

T4 was 14.2 (11.0 - 22.0 pool/L)

I explained to the GP what I'd done. I took my books along to demonstrate I'm read on the subject & I explained that I don't convert synthetic T4.

He asked me what I wanted. I said well I could ask you to prescribe NDT or T3, but I know that might be difficult, so I'm going to go Private. In truth, I wouldn't tolerate some clueless (edited by Admin) Endo sticking his nose in.

GP was delighted. Said he would happily give me blood tests every 6 months.

So...I'm wondering what's the best plan of action now. I could just buy my own stuff (done it before I was diagnosed), or is there a good private doc, who can prescribe me??

I had bad reactions to NDT in the past, but in hindsight I probably did dive in on a high dose. I would be prepared to try it again & would start on the minimum dose for at least 6 weeks.

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7 Replies

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  • It might be worth seeing an endo. A few of them are okay and mine prescribes T3 to me as he could see I wasn't converting either so not all of them are clueless :-)

  • Thanks, but it's not an option.

  • Knackersyard,

    Email louise.roberts@thyroiduk.org.uk for a list of private practitioners or buy your own T3 and NDT online. 100mcg Levothyroxine is equivalent to 33mcg T3 or 1.25 grains NDT.

  • Thanks

    Re the NDT, the reason I'm tempted to give it another try is I'm not sure T3 does anything for me. I can literally eat them like smarties. 10, 20...feel nothing.

    So NDT. I tried 2 brands from Thailand years ago (Thyroid-s & Thiroyd). I had immediate bad reactions to both. Really bad droopy eye bags & puss discharge from eyes. I accept I probably started on a high dose.

    What is the most popular brand here? Is it worth paying for Armour or Erfa?

  • Knackersyard,

    Thyroid-S and Thiroyd are probably the most popular because they're the most affordable and easily obtained. Armour is the most expensive brand which doesn't mean it is the best. There appears to be a shortage of Erfa at the moment. I suggest WP or NatureThroid which are hypoallergenic.

    You can start with 1 grain and increase in 1/2 grain increments at two week intervals and check thyroid levels including FT3 6-8 weeks after you've been taking 2 grains. thyroiduk.org.uk/tuk/testin...

  • Thanks again Clutter

    What is WP? & where would I buy it or NatureThroid?

  • Knackersyard,

    WP and NatureThyroid are both manufacturered by RLC Labs but WP has fewer fillers.

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