2 years ago I was diagnosed as hypothyroid by my gp with a low T4 and normal TSH and put on 25mg levo. After christmas 2014 I was put on 50mg levo as my T4 had drpped below range again. My doctor also tested other pituitary hormones which all came back normal. I had a private blu horizon blood test 6 weeks after starting new 50mg dose as I waned to know my T3 levels which my doctor could not order on the NHS and this showed T3 and T4 in range (4.1 and 14.4 respectively) but a suppressed TSH. Concerned with this result I went back to and showed results to gp. He suggested I try 25mg and 50mg on alternate days which I did and started to feel slow and tired and my dry skin and aching joints came back. I therefore went back to 50mg. I also asked to be referred to an endo which my doctor did.
I saw the endo last week who said with my history he would not have diagnosed hypothyroidism. I quizzed him why he would not have done so giving my symptoms and he replied by saying he was very suprised that levo had given me any relief and seemed to not even acknowledge my symptoms. I had brought along my nhs lab results from a blood test a week prior to my appointment showing T4 below range (11.1) and TSH normal (1.95). He said the discrepencies and low t4 results were probably due to assay sensitivity issues. He wants to test me at another lab which he prefers.
I am concerned I have made a terrible mistake going to see an endo and should have stuck with my gp. Can he take my levo off me? I am very worried.
If anyone knows of a good private endo in essex or london could you pm me?