Hi folks. I'm new to this community and am glad to have found others who can relate to my struggle for diagnosis and explanations that make sense.
I'm currently 39, and a couple decades ago a doctor found nodules in my thyroid and a specialist said to get an ultrasound every 2-3 years to make sure they weren't growing into something nasty. I have done so and have never had an unusual ultrasound or blood tests and the nodules seem content to stay put. The women in my family are no strangers to thyroid troubles so I assumed at some point my time would come.
In 2013, my ultrasound showed my thyroid as right lobe 5.2 x 1.3 x 1.2cm and left as 3.9 x 1.4 x 1.2cm. In 2016, my ultrasound showed my thyroid as right lobe 57x16x12mm and left as 53x15x11mm. The doctor freaked out that my thyroid had grown so much and asked if I felt it pushing on my wind pipe. At the time I did not. She said to come back for another scan in 6 months. At the time, my blood levels were tested at Anti TPO <0.50, T3 117.5, Free T4 0.97, and TSH 1.499, which the doctor said were fine.
Six months later, I most definitely felt something pressing on my throat/windpipe and went back for the next scan. It showed the right lobe as 1.3 x 1.3 x 5.4cm and the left as 1.3 x 1.1 x 4.4cm. My blood levels were T3 119.4, Free T4 0.97, and TSH 1.157. My doctor said it was all back to normal size and my blood was fine. When asked why it expanded and contracted, she said sometimes the thyroid expands temporarily when fighting infection. When asked why I now felt the pressure on my throat when I didn't before, she said I gained a couple kilos in the past 6 months and since the neck is a finite space, the extra fat was crowding things. When asked about my other symptoms (fatigue, not sleeping well, weight difficult to control despite good diet and activity, generally feeling not right) she said probably I have sleep apnea and sent me to the sleep doctor. He said I am not a obvious case for sleep apnea - partly due to the fact that I couldn't confirm if I snore when sleeping as usually there is no one else sleeping in my room. He declared my windpipe wasn't blocked but grudgingly said he'd do a test if I wanted to make sure. He echoed that I was just fat and that the fat was crowding my thyroid in my throat. He recommended I lose the couple kilos I gained and see what happened. He also seemed to think that my feeling pressure on my throat was psychosomatic.
Since then I have been trying to monitor the symptoms and ensure I am keeping active and such so that the next time the doctors point to that as a cause I can say no to that explanation and force them to pursue something else. I've noticed that I sometimes feel my pressure on my throat and sometimes not - it seems to come and go. I've been trying to pinpoint what might influence that but do not yet have any decisive insights.
Does anyone have any thoughts? I have no problem standing up to doctors and find it helps if I have some good information on my side. Thanks in advance!