Normal blood tests again but still feeling awfu... - Thyroid UK

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Normal blood tests again but still feeling awful and getting worse.

Dizzydoris profile image
18 Replies

Following my blood test on 21/6/2019 to see if I am Hypothyroid the results have come back normal again.

I have asked for a printout of them only too be told I can if I pay £20 for them.Im still waiting for a date for the ultrasound of my thyroid, apparently as my gp put routine, I have up to a 6 week wait .The feeling of a lump in my throat is getting worse and I’m having more trouble swallowing food

.

I’m constantly clearing my throat and have an annoying tickling in my throat that makes me cough a lot.

My Gp said that my remaining bit of thyroid was bulkier than usual.But he couldn’t feel any nodules .He thinks the swelling is at the back of my thyroid. I’m just about to give up because its not worth perusing anymore

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Dizzydoris profile image
Dizzydoris
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18 Replies
ILR2019 profile image
ILR2019

Whatever you do, don't give up! You may be offered advice here which enables you to push for a diagnosis/treatment from an amgle you may not yet have exhausted.

Firstly, who told you your results were normal and did they verbally tell you what your results were?

Secondly, who told you you have to pay to access your test results? On the NHS you are entitled to view your results online (you may need to request further access, but this is quick and easy to do). Health professionals have a legal requirement to allow you to see your results (more info here: nhs.uk/using-the-nhs/about-...

Edit: I see on your previous post you were already given advice about accessing your results. Did you act on any of that advice and then were still denied?

Dizzydoris profile image
Dizzydoris in reply to ILR2019

Thankyou for replying to me . It was the receptionist at my gps surgery who said they were normal, and that I would have to pay to get a printout .

I will be going back there tomorrow and will not be leaving till I get a free printout of the results.

ILR2019 profile image
ILR2019 in reply to Dizzydoris

I would recommend speaking to the practice or patient service manager and explain you are legally entitled to a copy of your test results and they can not legally charge you. Put in writing if need be so your 'complaint/dissatisfaction' is officially lodged. Once you have those results you can post here and the more experienced forum members can advise you on your results.

Do you know what blood tests your GP ordered?

shaws profile image
shawsAdministrator in reply to Dizzydoris

Never take notice of someone who works in a surgery.

Even GPs don't quite know how to interpret blood test results.

Always ask for a print-out of your results with the ranges. We are entitled by LAW to receive them. Some surgeries charge a nominal sum for paper/ink.

If the cost is too high, tell receptionist to let you copy from her computer.

£20 is ridiculous and it should be a 'nominal sum' to cover paper/ink. I get mine for nothing. If she still refuses say you will be speaking to your MP as you know many get a print-out for nothing.

Dizzydoris profile image
Dizzydoris in reply to shaws

I’m going down to the surgery first thing tomorrow x

Dizzydoris profile image
Dizzydoris in reply to ILR2019

I did act on them but just got fobbed of as usual .

I will be writing a letter of complaint to the practice manager, Thankyou for your advice .

ILR2019 profile image
ILR2019 in reply to Dizzydoris

Yes absolutely do. They have a legal obligation and you have every right to lodge a formal complaint

Dizzydoris profile image
Dizzydoris in reply to ILR2019

I intend to , Ive had enough now .

shaws profile image
shawsAdministrator in reply to Dizzydoris

It annoys me so much that we who are ill and have an autoimmune disease, through no fault of our own are then denied a copy of our own blood tests with the ranges. We have to battle to get diagnosed (I had to diagnose myself): then we have to battle to get an optimum dose of hormones: have to battle to request a T4/T3 combination. T3 then withdrawn. It is too exhausting.

Dizzydoris profile image
Dizzydoris

I will do Thankyou, I think they see me a neurotic female who won’t accept that nothing is wrong. It’s so frustrating, 4 years ago I had an endoscopy because of the same problem. It showed I had swellling at the back of my throat but nothing was done.

2 years previous to that and having the same problems although not as bad as they are now , an ultrasound showed a blood filled cyst on my remaining bit of thyroid.

I was scheduled for a fna and was provided with diazepam to calm me down .

When I got in the room to have it done the dr told me he wasn’t going to do it after all and I could leave.

I spoke to the ultrasound department of my local hospital today and was told my gp had emailed asking for an appointment for me . He headed the email “anyone that deals with necks” which I think is disgusting ! I now have between a 6 and 9 week wait for an appointment.

shaws profile image
shawsAdministrator in reply to Dizzydoris

Maybe you feel like wringing the doctors 'neck', I feel sure. :)

Dizzydoris profile image
Dizzydoris in reply to shaws

Lol oh definitely or failing that let him have one week of feeling how I feel all the time .

shaws profile image
shawsAdministrator in reply to Dizzydoris

Maybe we should remove all of their thyroid glands for a month and see how they feel. Then maybe adjust their doses every 4 weeks.

shaws profile image
shawsAdministrator in reply to shaws

The link to 'safely getting well' may be helpful.

naturalthyroidsolutions.com...

shaws profile image
shawsAdministrator in reply to Dizzydoris

I wish we had more doctors who treat the patient and the relief of their symptoms rather than look at a blood test result alone:-

jeffreydachmd.com/2014/01/u...

naturalthyroidsolutions.com...

Dizzydoris profile image
Dizzydoris in reply to shaws

Exactly but my gp is useless .

Dizzydoris profile image
Dizzydoris

That’s exactly what my daughter said to do , I’m seriously considering it , but again I’m scared of not being taken seriously.

Dizzydoris profile image
Dizzydoris

I will do she is a lot firmer than I am .

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