Hello... this is my first post.
I developed severe exhaustion, pain, unable to barely walk and brain fog in Jan 2016 resulting in 6 months off work. In April due to being referred to ME/Chronic Fatigue Syndrome service at request of Occupational health my thyroid function was tested. My results were T4 @12 and TSH @5. The GP said I was borderline but due to my symptoms started me on 50mcg Levothyorxine. Within 2 weeks I felt a significant improvement though this did not last and nowhere near my normal self. I went back to work in August, not because I felt well enough to but as I found out I could be dismissed if I did not return! Anyhow that's another story....I have continued to suffer exhaustion, pain and flu like symptoms if I increase physical activity, subsequently I was diagnosed with ME/CFS last year, though this just means they cant find anything else wrong with me it has meant that I have had support from ME/CFS NHS service, which has been very good. My symptoms worsened again this winter. I have repeatedly asked GP if Thyroid still a problem and he repeatedly told me no my results normal, T4 19, TSH 1.4. Last time I saw GP he said he would re-check my bloods and may refer to endocrinologist. I decided to go privately at a cost of £200 for 45 minute consultation. He told me that the T4 was not really important only TSH result important and should be 0.1 - 1 ideally. I asked him about T3 and he said there was no point testing it as they could no longer prescribe T3 as it had been banned....
Anyhow had my thyroid re-tested and TSH 1.84 and T4 15, seemed to me my Thyroid function decreasing. The GP told me results were normal but when I said endo said TSH should be 0.1 - 1 he said I could try extra 25mcg thyroxine and retest in 8 weeks. The Endo also wrote a letter advising this. My blood tests also showed that my vit D was low. I'm gluten free and recently reduced dairy though still eat cheese. Hard to know which parts have biggest effect but I do feel better though still have every low tolerance of any physical exertion, I can only walk distances of under 20 metres and very slowly so long way from my normal active Zumba loving self! But back at work and a lot better than a year ago when I could hardly hold my head up for more than two hours and my brain was just a foggy mass! I am now back working 30 hours a week.
Also my brand of thyroxine was changed to Tevo two weeks ago and I seem to feel much better from taking that but that could be coincidence (could be reduction in dairy, increase in vit d and vit c intake, reduction in activity)!! The pharmacist said that all brands had been brought into be in line with each other and so shouldn't make any difference.
Has anyone else had this experience? Or any comments about TSH levels and no point doing T3?
The endo also said that I was likely to also have ME/CFS but when I read comments on here a lot of people seem to have similar awful symptoms and just diagnosed with Thyroid problems.