Hi all, was wondering if any one can help me with my results as my Endocrinologist has reduced my medication and discharged me saying he could no longer help me, he was going by my suppressed TSH and would not be leave i was having symptoms despite the weight gain and other symptoms. Had test results from Gp recently, due to see them for a review in October.
These are my test results.
TSH 0.005 mU/L normal range 0.570-3.600
Serum free T4 10.9 pmol/L normal 7.7-14.0
Free T3 4.4 normal 3.1-6.8
Bearing in mind i do source my own T3 and take 12.5mg.
I also have Cons syndrome.
Thank you all in advance.
Written by
Shug1974
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As he's discharged you, declaring he can't help you, then his opinion regarding your dosing is irrelevant and has no validity. He therefore has no continued say or sway, over your health. I'd suggest telling your GP that you don't accept the reduction, especially as the Endo's admitted lacking the necessary skills and expertise required to participate in your health care, and therefore you're fearful for your health and of the consequences of taking less of your meds than you clearly need .......
Has he 'signed you off' so that it wont show on his records that he's failed to restore your heatlh? Most get afraid when our TSH is 1 or lower, when we actually feel better on that than 'TSH somewhere in the range'.
It looks as if you will be forced to do what many on this forum have done i.e. source their own additional thyroid hormones. Both your frees could be a bit higher and you then may feel much better.
It has been reduced from 112.5 to 100mg. They are aware that i am taking T3. From what i can remember my TSH has always been suppressed before i started taking T3. I have had partial thyroid removal due to a tumor. At the time of removal which was about 6 years ago i was told i did not need the medication till i went back with a huge weight gain and test showed hypothyroidism. I also have a benign tumor on my right adrenal gland and basically on blood pressure medication to control my blood pressure. Both of my adrenals are producing high Renin. Been told surgery is not an option.
Yes I'm aware what 0.005 is, my TSH has measured around that number or less, for the best part of 40 yrs; but I wasn't commenting on that - estrellaliliana wrote that it is 'better not to be TSH under zero' and I was making the point that in quantative terms a substance can't be a negative amount. You cannot have a minus number of eggs, or minus weight of flour, or minus measure of TSH.
Hey Valerie0106. It says FT4, then your result, then it’s says ‘norma od’ and then you put the first number of your range, then it says ‘do’ and you put in the higher number of your range. When you’ve done both (or you can just do one) and hit the ‘Oblicz’ button
I'm very similar with tsh of 0.007 and t4 12.3 .gp referred me to endo for advice and I'm awaiting results of pituitary mri so doesn't seem that they have investigated anything for you !!! I still wasnt feeling great on those readings so endo upper t4 by 25mcg but decided I didnt need t3...found low vit d though so hoping treating this will help. Can they re refer to another endo for 2nd opinion??
I'm lucky as 1 gp at my surgery asks how I'm feeling using numbers as a guide but most look at my tsh and cut dose or one consultant told me didnt think I needed levo at all! Cut dose to 50 cue 3 months of misery ...more informed thanks to groups like this now so can fight my corner a bit better!!
The good news is that optimizing your Vit D will help with conversion of T4 to the active T3. You can use this calculator to figure out how to get your blood levels up to a target level. I would aim for at least 50. grassrootshealth.net/projec...
Thank you for that there is so much info out there !! Lots of sites recommend vit d to be over 100 with autoimmune thyroid disease so using sprays as b12 is lower end of range so wonder that absorption could be problem too !! Its a proper minefield with so many things linked back to each other .
My apologies. My comment about aiming for over 50 applies to the measurements expressed in ng/mL, which is common in the U.S.. In the UK they tend to use nmol/L.
Hi Maryah85 I'm now on t3 10mcg once a day and 100 mcg levo after an endo suggesting it. Have been on it since last May and am doing OK. Ironically I have an endo phone call this Thursday but haven't had a blood test since last May so doubt anything will change !!.
Thanks! I’m seeing my endo next week. My endo actually wanted to lower my dose, I’m on 50 and my gp wants to up it! I just want to feel better having lightheaded episodes close to fainting and not feeling right at all! I’m new on my thyroid journey and trying to get my levels right. I’ve got my mri soon too to see if it’s the pit gland. Hope yours went well.
I am one of the fortunate few with a great NHS consultant who has just managed to get my T3 funded after a short trial followed by a year of giving me private prescriptions. I take 20mcg T3 with 100mcg Levothyroxine on 4 days and 75mcg Levo the other 3 days.
My TSH Is also 0.005 and my T4 is towards the higher side of the range - I've been taking 25mcg T3 with 112mcg thyroxin (I cut a 25 in half) for ages and feel fairly balanced at the moment - by no means hyper, but really quite well. I can't drop the T3 without feeling rubbish. Fortunately my private doctor hasn't questioned my low TSH although my NHS doctor refused to continue with T3 last year sometime.
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