My wife has suffered with an overactive Thyroid for 5 years, looked after by the Endocrinology department. After 4 years of reasonable control with Carbimazole, they tried to reduce and all went wild for 4 months. This led to taking a Radio Iodine tablet. At just over two months she was cured over night, she felt back to normal. This lasted about 14 months, Fantastic. Then a period of going underactive, slowly picked up and treated with Levothyroxine. This worked for a few months, leading to increasing Levo. For the last 6 months she has been going downhill. Early morning nausea, which is now lasting until midday, notices the cold, very sensitive. Best left laying down, symptoms improve early afternoon. This clears mainly in the evening, a brandy helps and she has a good nights sleep. To start all over again. Tried antidepressants, but none work, Scans for stomach issue, but always clear, awaiting an endoscope test.
One thing for sure she is feeling awful.
Awaiting the latest blood test, but with varying reasons on why sometimes T4 & T3 is not tested. "The lab refused the test" !!
I have ordered the book STTMadness and will try and get back the understanding I used to have. I myself have been bogged down with Polymyalgia and two viruses and have been hoping the Doctor would get in control. I've not got much hope. A year ago I asked for her to be referred back to the endocrinology department, but was refused "We can sort it"
Do I now go for a Endocrinologist, private consultation or is this going to be another waste of time?
My wife's TSH was 7.4 last October and increase of 25mg Levo. bought it down to 2.4 and the last test it was possible 0.7, but I wasn't there at explanation.
The latest test should be all three tests, my wife can't get an appointment for two weeks to discuss, I haven't tried I was out yesterday (Friday) But getting rather annoyed with the lack of understanding of what she is going through.
Apologies for the length of detail. Looking back over 6/7 years the symptoms have always been the same. Over or Under active.
A little guidance would be a real help.