Battling with the Doc!: Hi, I am experiencing... - Thyroid UK

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Battling with the Doc!

Lisacameron24 profile image
11 Replies

Hi,

I am experiencing extreme fatigue and it's starting to get me down. The dr has prescribed me antidepressants saying I am suffering from anxiety but not willing to listen to any other symptoms I am presenting with. I had gained 2st in weight, which I cannot lose, I struggle to put of bed in the mornings and I regularly have to have a power nap when I return home from work. In August 2016 I had a number of bloods test, my TSH and T4 came back within the normal range and my vitamin B12 was border line. This week I paid privately for thyroid test because my dr refused to test me for T3. My levels have come back - TSH 2.61 - T4 15.00 - T3 3.8 - I returned to the Drs to see if they would consider treating me for underactive thyroid and the answer was NO. Instead the dr has offered to send me to a cronic fatigue clinic, which I have since found out is for ME patients. I'm so frustrated! Has anybody had a similar experience? If so what was your outcome? I can considering booking an appointment with a private consultant to my diagnosis. Please help!

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Lisacameron24
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11 Replies
puncturedbicycle profile image
puncturedbicycle

If you look to the right under 'topics' you'll see 'can't get diagnosed' and read loads of stories like your own. A private consultant isn't likely to help until your tsh is a bit higher and/or other levels are under range and/or you have raised antibodies but if you have your bloods done early on an empty stomach you may get there sooner rather than later.

There is also the issue of nutrients levels: ferritin, iron, folate, b12 and d. We're often low.

humanbean profile image
humanbean

If you had these tests done privately, have you got the reference ranges? They are always essential in working out what might is okay and what isn't.

If you have them could you edit your post and add the figures, please. To edit your post, look immediately below it and click on the v in a little square box, then click on Edit. Make your changes and then Post again.

BadHare profile image
BadHare

I was diagnosed with FM, but don't have the symptoms since self-medicating. I have a pituitary tumour & most hypo symptoms, but the endos ignored my this & said all was normal.

I skipped the private tests & consultants in favour of the Barnes basal body temperature test, with a cheap digital thermometer, whilst trying to up my nutrient intake. When I started NDT, I increased cautiously with a quarter grain every few weeks, in case I was wrong to do so. It took time to work, but eventually the fatigue & aches decreased. I added T3 last summer, & feel comfortable trusting how my body feels in response to the THs, than all the cr*p I was prescribed that didn't help.

Mel

Peaches71 profile image
Peaches71 in reply toBadHare

Hi

I'm interest in this Basel temperature - I've taken mine for a month after coming across Wilsons Temperature theory ...mine is 34-1 in the morning always ...between 34-8 and 35 lunchtime ..34.4 afternoon and occasionally 35- 36 after tea time .....is this relevant to thyroid as my GP won't listen 😡

BadHare profile image
BadHare in reply toPeaches71

"Normal" is 36,7 degrees celcius.

Have you tried with a different thermometer, just in case yours is faulty? If so, & your temperature is still consistently low, perhaps you need to see a different doctor.

Google - dr lam / adrenal gland syndrome / articles

I was diagnosed with hypothyroidism 9 years ago but CFS / IBS / Digestive disorders/ allergies still got worse and the Drs kept putting up my thryoixde till I got toxicamia..

the Thyroid and adrenal gland and pituitary gland are all linked and must be considered together..

I'm now on the road to recovery having been diagnosed outside the NHS with adrenal gland fatigue .

see if the above Google research makes sense to you

jamesal0 profile image
jamesal0

If you want feel normal change to NDT. You have to import and self medicate but you get normal back.

grammijee profile image
grammijee

Hello Lisa,

I have struggled for years to have treatment for Hashimoto's even though I have test results showing antibodies. My doc wouldn't even be willing to look at these results even though they came from an big international hospital in Bangkok.

I was diagnosed over 30 years ago with M.E. and two or three years ago I was sent to an M.E. clinic. I did benefit to some degree, from their coping techniques, though, of course, it didn't cure me, as you would imagine. It's worth it from that angle, because we do tend to talk ourselves down, and that was very valuable. You can't lose anything by going.

Hope it helps.

Lisacameron24 profile image
Lisacameron24

Thank you for your comments everybody. Much appreciated x

Warrior75 profile image
Warrior75 in reply toLisacameron24

I had already been diagnosed with under active thyroid I was on 75mg and was dead on my feet struggled to get up in the mornings I use to put my clothes on ,on top of my night clothes ,slept most of the day my TSH at the time was 4.9 and the top end of the range is 5 where I live but according to the dr I was within range I was still diagnosed with cfs last January I did mange to improve but symptoms are coming back now I'm on the lowest dose of Levothyroxine and I now know certain brands don't agree with me but I suppose you could say I'm in denial I have CFS I do believe in my case it's my thyroid good luck on your journey

Warrior75 profile image
Warrior75 in reply toWarrior75

I also did cfs clinic group it was nice to talk to other fatigued people but for me a lot of the relaxation techniques made me want to fall asleep lol and my main aim was to stay awake but I do always thinks worth to give these things ago 🙂

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