Medication trial and errors.

[misschris]

Hi All,

I would be interested to know if anyone has had similar symptoms that I am experiencing. I have tried so many different combination of thyroid meds and by doing this I am worse for wear.

When I first started taking levothyroxine in 2009 after removal of thyroid, I suffered so many symptoms that my body was not used to, the medication was increased decreased and nothing seemed to make me feel ok, then I went on 1 and 1/2 grains of armour which made me sweat a lot, we decided to decrease the armour to 1 grain and add 50mcg of levothroxine, taking into account that there had been changes to the armour as it was took over by actavis and people started to have symptoms, so I thought my problem with armour was due to actavis.

On the new combo of armour and Levothyroxine I started getting neck ache, headaches daily, migraines at least 2/3 times a week and neck and chest sweats at night, I would wake up and still do at least 2/3 nights a weeks with my hair and pillow saturated, my endo took me off the 1grain of armour as I thought that was the problem and changed my meds to 125 mcg of levothyroxine, since then nothing has changed and she has now put me on 100mcg Levo and 20mcg of T3. I started this combo last saturday but only taking 10mcg a day to let my body get used to the T3 my symptoms are still the same with the added aches and pains in my body. I am going to add the extra 10mcg today and see if there are any changes to symptoms.

I feel since October last year my health has deteriorated and I just can't seem to find out if it's my meds causing me the problems or my symptoms or something else.

Chris

[SlowDragon Administrator]

ask GP to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

Might also be worth checking your levels of antibodies. If high, then gluten free diet may help.

thyroidpharmacist.com

chriskresser.com/the-gluten...

amymyersmd.com

Excellent web series of thyroid documentaries starting March 1st

thethyroidsecret.com/trailer/

[misschris in reply to SlowDragon]

Hi Slowdragon,

Thank you for replying to my post, thyroid is so complicated and GP's are even more complicated, they just won't see outside the box which is really frustrating.

I know my folic acid and zinc are not in range and GP to buy them from the chemist, my B12 was low in the low end of the range 316 but GP said they were in range and that was the end of it. I don't get the tests results printed because my GP charges £10 to print a copy.

I have just received from amazon B12 which I will start to take them today as well folic acid and zinc.

Does being hypothyroid (TT) make you gluten intolerant?

I have been watching her videos but it's all well and good these people coming forward but it's actually down to the patient to self help, as you know we don't get armour on NHS my gp would not prescribe T3 that my endo asked him to, my endo has to prescribe it. My gp won't even give me a print out of test results.

[Angel_of_the_North in reply to misschris]

I would complain about being charged £10 for one sheet of paper as they are not allowed to make a profit on printing your results.

[misschris]

I asked why they charge £10 for a print out and receptionist told me that the GP,s buy there own stationery and is not funded by the NHS.

I've never heard of it, I work in social care and each time I have attended clients GP app and asked for print out they have just done it.

[SlowDragon Administrator in reply to misschris]

Alternatively you can now ask for online access to your own medical records.

Though not all surgeries can do this yet, or may not have blood test results available yet online. But they are obliged to by the government to do so ASAP

To do so, take photo ID to surgery, fill in form and then they post you log in details.

[misschris in reply to SlowDragon]

Thanks Slowdragon, I will phone up surgery tomorrow to see if they have online access and arrange to take my ID in.

Some surgeries are really helpful, mine are awful, I will have to look at changing my GP.

[mtcorr]

I work in a gp practice and I find a £10 charge appalling. As suggested see if you can get online access if no joy I would suggest getting a small notebook ensure all your details are on the front. Write down the names of the tests in the left hand column ie tsh, t4 etc. draw out columns and write the date of tests in the top. Then attend the surgery and ask politely if they would mind filling in your results. This is where it helps to be friendly with the receptionists, believe me they are exceptionally busy, but explain you are willing to wait or come back and collect the book. This would be the same as patient record books held by rheumatology patients who attend hospital which we fill in on a regular basis.

Hope this helps.

[misschris in reply to mtcorr]

I have just made app to see gp tomorrow, will ask if they do online access to medical records and will get him to write down my last results.

i will take ID with me so that I can register for online access while am there.