I have been on Levothyroxine since I got thyroid cancer surgery (total thyroidectomy) 5 years ago. The tumors turned out to be small so the surgery was too early.
I have been sick since I took Levothyroxine. I am in my 40's but feels as if I am in my 80's or 90's.
I did not have symptoms for the cancer before the surgery and was not sick before I take medication. After all searches and my experience, I believe my symptoms are mainly for side effect of levothyroxine. My mother had same surgery and same side effect and I find some people taking Levothyroxine have the same or similar symptoms.
At first, I did not think it is side effect of levothyoxine in spite of all test and treatment at many department, doctors do not know the reason and asked me to see a psychiatrist. I saw several of them, but did not work. On the contrary my health got worse faster due to side effects of the medicine, I passed out and was hospitalized at ICU for 4 days.
Anyhow, is there anybody who get T3 only treatment and it works?
I wonder if I can stop T4 and take T3 only though I do not have thyroid gland.
Some people switch to natural thyroid hormone(t4+t3) or T3 only treatment.
I am very sensitive and allergic to filers of drug so some natural natural desiccated thyroid hormone gives me immediate side effect. NP Thyroid does not cause immediate side effect but do not know if it works and how long it will work as I heard after several months natural thyroid hormone did not work for some patients.
If I have no option left, I should try to take T3 only but I don't know if I can find a doctor to treat me that way in the U.S. Most doctors prescribe synthetic T4 only.
Symptoms: bad blood circulation and stiffness (paralysis), blood contacts, arms & legs asleep and cold. fever, sweating, rapid heart beat & increased pulse & blood pressure, brain fog, muscle weakness, pain on butts, hip, thigh, leg, back, shoulder, leg cramps, headache, blood beats, internal vibration, tremor, hair loss, swelling of arm, foot, leg, face, rash, itching, difficulty of breathing. nerve pain, extreme fatigue, dizzy, less focused, loss of memory, etc. (I find all is from the list of side effect of synthroid/
The more I move around or do some activity, symptoms get worse. Can't work not exercise as my thigh, legs, and feet are on pain even on 5 minute's walk. Due to low energy, can't lift or carry things. If I do, I get too exhausted. When lying on bed or seating on chair, pressing points are in too much pain and due to bad blood circulation causing my body asleep and paralyzed (stiff), I can't sleep well nor long.
I wish I did not have the surgery to get rid of total thyroid gland. I did not know side effects of thyroid hormone is this serious and life threatening.
Hormone reacts differently person by person, but if there is anybody who have similar situation, I wonder how you guys are getting through.