This is a video I've posted in the past which will be an eye-opener for members who haven't seen it previously.
healthunlocked.com/thyroidu...
Also one of our Doctors - Dr Chandy lost his medical licence because he gave patients B12 injections for his patients who needed them.
Omg how interesting ty
What should B12 levels be?
It is now recommended that towards the upper range (900 to 1000). Marz posts some good info re B12.
Over 500 to prevent neurological damage I have read. When Hypo higher levels nearer the top of the range are often mentioned. Any result you have for B12 contains the bound and unbound B12 in the blood. Only 20% of your B12 result has the ability to reach the cells where it is needed. Also have Folate checked - which needs to be halfway in the range - as they work together in the body. Low Folate can cause raised Homocysteine which in itself is a problem in the body.
The book - Could it Be B12 ? - by Sally Pacholok - the 2nd Edition - is a must read for everyone .....
Once supplementing B12 further testing is of little importance as results are skewed.
Marz kept prompting me to buy and read -
'Could it Be B12' by Sally Pacholok,
I only wished I'd read it earlier, everyone should be reading this eye opener book, including Medics.
Have you watched the video in the link I posted below ?? Do pass it on if you can 
x
Yes I am going to ASAP, I couldn't find my ear plugs earlier, but thanks for the prompt as I had forgotten.
I am going to order it now thank you
Does anybody else wake up at about 4.30am every morning it's driving me mad. Is it linked to thyroid. My endo says not.. so exhausted 😴
You can watch the tennis from Oz 😊 I am ! I am in Crete so two hours ahead.
GP will test Folate and it should be mid-range.
Early morning waking - could be Adrenals ....
What do you mean by adrenals. I am just learning about all this. It's all very confusing .
youtube.com/watch?feature=p...
The above link takes you to a talk at an earlier PAS Conference. 4 minutes in and the talk by Prof Smith begins to discuss his research into B12 and brain shrinkage .....
Well worth watching M, will pass on the info to family members who are worried about the family connections to Altzheimers/Dementia/MS.
Thanks for the extra nudge. 
Marz
I've just watched and it was very enlightening. I think you should put up a new post so it isn't buried within this one. Thanks for this link.
I think it is imperative for everyone to know how important B12 is to try to prevent or lessen the impact of Alzeimers/dementia.
Thanks for posting, although I had seen it before, I really benefited from watching it again.
Thank you for posting 😊
Shaws thank you for posting definitely an eye opener! Those red flags ring true for some of my symptoms. I didn't know it was so serious.
Thanksfor posting
From what I have read about Dr. Chandy, he is a hero.
He is a hero and has been penalised because the pharmacist reported the high incidence of B12 being prescribed. I do not know how his patients have got on but suspect they have to source their own B12 now. How many patients' lives have been changed and improved and it is disgraceful that they are being denied a pro-hormone essential for our wellbeing.
Dr Peatfield and Dr Skinner are another two doctors persecuted for diagnosing and treating patients who were unwell. One women who Dr P treated and wrote a book 'Tears Behind Closed Doors' by Diana Holmes who had about twelve diagnosis and some operations for things she did have. So the symptoms were diagnosed as 'something other than hypo' and Dr P diagnosed her immediately he saw her and she recovered from there on and did work for Dr Skinner as well. He is another doctor who tried to change the method of diagnosis but was up against an institution who don't have an open mind for those who either don't have a TSH high enough and also prescribe doses which are too small.
Is there a generally recommended B12 supplement and recommended daily dosage, anyone? I did feel better when I took it but stopped when my Blue Horizon test came back as 'high'...maybe should've ignored it???
Always good to keep on with a maintenance dose in my non-medical opinion. Levels can very quickly fall. Have a read of my post further up this thread about the blood test. I have had my B12 tested for years as I have/had Crohns and the Terminal Ileum was removed 43 years ago. I was always told it was normal - but looking back the so called normal was in the 300's. I live with the consequences !
There are two B12 supplements, cyanocobalamin and methylcobalamin and we want methylcobalamin.
methylcobalamininfo.com/met...
There are another two:
hydroxocobalamin
adenosylcobalamin
Both are readily available from internet sources (unlikely to be found on most high streets, though).
The Pernicious Anaemia Society have some useful pinned posts:
I must say after watching it - Even I was surprised at how much damage a deficiency of B12 can do. I have both B12 deficiency and pernicious anaemia. I take supplements for the anaemia and folic acid as well as the injection.
Thank you for posting this. I watched the first video. It is extremely informative for myself as well as for two of my granddaughters who each have different problems, both mentioned on the video. This is such an important bit of information. Why don't the doctors follow this more closely. Thank you again!
untill i had my stroke last yearnov2015 been on thyroid meds for lost count how many years but al least 20 haad a lot of problems with my stumic like the runs most of the time but since my stroke and a lot more meds seam to be ok most of the time going to go ti a health store and see if a can get some kind of b12 as still have memory problems which they are blaming stroke fornow no harm in trying
Elizabeth, I'm sorry you have had a stroke which has affected your health even more. Before you buy B12, if you can, I think you should have a blood test for B12 and homocysteine levels to exclude that it is due to low B12.
However, if you are unable to, you must buy methylcobalamin B12, sublingual if possible (dissolves under your tongue) as many other B12 may be cyanocobalamin and may not be so effective.
I am not medically qualified but have a B12 deficiency myself.
see what u mean cant get it any where got the strongest i can for now at holland and barret ,were do u get it
going to try health shop in the forge as i stay in glasgow and it the only one i no
Could you order JARROW B12 on-line ? You will also need a GOOD B Complex to keep all the B's in balance.
You may have raised Homocysteine and both will help to lower the level if raised. Often is with stroke and heart patients .... happy to help 😊
You can, if you wish order through Amazon Affiliate and Thyroiduk.org get a small sum towards their expenses. There's more choice and it must be methylcobalamin sublingual and many health shops don't have it.
This is a copy I did a little later than your question.
shaws Administrator
You can, if you wish order through Amazon Affiliate and Thyroiduk.org get a small sum towards their expenses. There's more choice and it must be methylcobalamin sublingual and many health shops don't have it.
amazon.co.uk/s/ref=nb_sb_ss...
tryed other places for b12 but no one heard of them boots checked computer and said not showing up
Boots doesn't do B12 methylcobalam and I have found Amazon has a bigger choice. Most B12s you can buy over the counter aren't sublingual or methylcobalamin which is usually best for us as our stomach may be compromised a bit because of hypo.
You have to get a print-out of your results with the ranges. If you can manage to get to the surgery. Some charge a nominal sum for paper/ink and we are entitled by law to get a copy (if you are in the UK). The receptionist telling you that they are o.k. isn't sufficient. You have to know exactly so it is worth going personally to the doctors and don't be nervous as most of us on this forum do so.
so phoned docs for blood results said they ok so why am i still so tiered must still be effects of stroke but was told that usually lifts ,ma be am just very lazy as that is how it is starting to look doc wasnt that keen on doing blood tests in the first place
I'm sorry you have had a stroke which might make it difficult to get to doctors. So phone the receptionist and say 'I would like you to give me the results of my blood test. I need the ranges as well. Thanks'. Have your pen/paper ready. You are not lazy and the receptionists don't know much more than those who are supposed to be experts, so try your best but I do understand that your stroke may have made you a little shy to ask.
will need to wait till monday have to go see works doc as they going to try make me take ill health retirement so it a waiting game again just so tiered all the time
Ask the doctor does he know sufficient about hypothyroidism. If he says yes. ask what is the Active Hormone I require to run my metabolism and to make me feel well. I wonder what he'll say. If it is T3 ask why it is rare for it to be tested and why cannot I get a prescription and New Research from two separate Scientific Research companies show that if on T4 alone many need the addition of T3. Does he want some copies of details of the research .
i was allways on t3 untill for no reson i no of got changed to t4 donyeven no when it happened as my meds come in a med pack made up was looking at meds and noticed it was not thyroxing
B12 range - Dutch B12 deficiency organisation
B12 confusion ?
