The importance of B12 especially connected to alzeimers

[shaws]

I've posted this in the past:-

healthunlocked.com/thyroidu...

[Marz]

I do believe we have to keep flagging up this video. B12 is on my radar daily as Docs think you are fine/normal/ok when just in range ...

I tested around the 300 mark for years as I was supplementing a B Complex but now live with the consequences of B12 Deficiency.

B12 is metabolized in the Terminal Ileum where it is returned to the liver for re-cycling. So anyone with gut/bowel issues could well suffer a B12 issue. This is added to low stomach issues with Thyroid that again lowers the uptake of B12 from foods ... we need good acid.

I have/had Crohns - no Terminal Ileum due to surgery - Hashimotos - and I inject B12 weekly.

[shaws Administrator in reply to Marz]

I cannot find the video I've posted in the past where the doctor was crippled and could barely walk and near death until his doctor friend took him to a Specialist somewhere in the USA who diagnosed B12 deficiency - it took quite a number of months for him to recover and had been given lot of B12 and he was eventually able to work again - but he had to use a stick to be able to walk.

Even though he worked in a hospital - none of any of the personnel had any idea that he had a B12 deficiency. Also the fact that some people get clear symptoms but still undiagnosed.

[SeasideSusie Remembering in reply to shaws]

Do you mean this film shaws

youtube.com/watch?feature=p...

[shaws Administrator in reply to SeasideSusie]

Brilliant Seaside Susie and yes. No-on would expect doctors to be completely unaware of this serious conditions and how many doctors are ignorant.

[shaws Administrator in reply to SeasideSusie]

We used to get a B12 injection every month - now that has been extended to every three months which I think is ridiculous for those who have P.A. myself included.

[Marz in reply to shaws]

If you have neurological issues then they should be more often ... Can you self-inject ?

[shaws Administrator in reply to Marz]

I've never done so but as it B12 is one of the most important vitamins, it might be worthwhile learning how to do so.

[Marz in reply to shaws]

Really easy ! I had a yoga friend do it for me at first - then I realised I needed to be in control so started to do it myself.

I had many - injection experiences in various pharmacies in Greece - done in the back room or office !! - So no fussing about cleaning the area to be injected or using a different needle to inject from the one used to load. So I sit on a towel well back on the bed so my thighs are well supported and relaxed. In the needle goes into the outer/upper part of the thigh - needle at right angles. Absolutely no pain - slowly let the liquid go - at that time it can sometimes sting a little. Job done !

[Lesleyg13 in reply to shaws]

I watched lots of nursing instructional YouTube videos to learn how to do it. 100 ampoules of B12 costs less than £60. Syringes and needles are cheap online too.

[Treepie in reply to Marz]

I suppose this is a good reason to use the oral sprays for B12 especially if on ppi ‘s

[Marz in reply to Treepie]

I think the recent comment that PPI's are linked to Akzheimers is quite possibly due to the blocking of B12 and other vital nutrients. Sorry I do not have the link !

Scroll down in the link below to read the neurological symptoms of B12 Deficiency ...

b12deficiency.info

[Treepie in reply to Marz]

I did see the suggested association NOT correlation with dementia but also effects on heart ,bone and absorption in the gut of levo ,B12 etc.

Sadly ,with Barratts oesophagus and hiatus hernia I need to prevent acid rising through reflux and causing cancer of the oesophagus .I tried cutting the ppi dose but the reflux increased.

Next stop MRI on liver as the enzymes have not reduced enough after the heavy chemo sessions during the first half of the year.

It had the same effect on my diabetes so now on metformin .I console myself that according to an Israeli scientist metformin helps prevent heart attacks, strokes and cancer!

[Marz in reply to Treepie]

So many pros and cons for everything. It must be so difficult to find the balance ...

[Lesleyg13]

Thought I should point out that the NHS website says (in theory) that depending on type of symptoms some people "may need" to get injections every 2 months. Not that I believe every 2 months is enough for most sufferers though.

"If you have had neurological symptoms that affect your nervous system, such as numbness or tingling in your hands and feet, caused by a vitamin B12 deficiency, you'll be referred to a haematologist and may need to have injections every 2 months."

nhs.uk/conditions/vitamin-b...

[shaws Administrator in reply to Lesleyg13]

I am glad they now suggest every 2 months for an injection. I think it should be compulsory as many people still think that a three monthly injection is sufficient. Some might need it every four weeks.

[Lesleyg13 in reply to shaws]

Couldn't agree more. I have to buy supplies from abroad to give my husband his B12 injections once every few weeks. He has Parkinson's and the high levels of levodopa medication he is on greatly reduces his B12 levels.

Ridiculous thing is that each injection we have to self administer is still cheaper for us than doing the round trip/fuel to get one done at our GP surgery. I had to fight to get injections prescribed for him in the first place, but after the loading doses only being allowed one injection once every 3 months was like pouring a cup of water into a swimming pool.

[shaws Administrator in reply to Lesleyg13]

Why give people with autoimmune conditions the lowest doses when an optimum dose (everyone is different) that relieves symptoms.

[Marz in reply to shaws]

Why not buy B12 when you are in Athens. Articlox Hydroxocobalamin - 3 phials in a box and 3 syringes for less than 5 euro ..

[Polaris]

Thank you for posting this shaws.

As 40% of those with PA/B12 def. also suffer from thyroid disease and vice versa, I thought others here might also be interested in one of the best, if not the best, basic sources of information on B12 I've found in several years from my favourite website:

westonaprice.org/health-top...

Personally, supplementing with Dessicated Beef Liver capsules has made an amazing difference to anxiety, mood and other neurological symptoms (wondering if it's all the other amino acids/synergistic B vitamins they contain). It's also enabled me to reduce B12 injections from alternate days to weekly 🤗

With that sorted, have only now to concentrate on what to do when my supply of Thiroyd without prescription from Thailand runs out 😳🤔

Suggestions by PM would be very welcome........

PS awakeningfromalzheimers.com...

[Kipsy in reply to Polaris]

Polaris - would you minding saying which dedicated beef liver capsules you take, especially if they’re from grass-fed cows. I read your link with great interest & would be very interested in trying some. Thanks in advance.

[Polaris in reply to Kipsy]

Hi Kipsy

Here is info on the liver capsules I'm taking:

amazon.co.uk/Desiccated-Liv...

I've been taking three capsules a day for nearly a month and haven't felt this level of peace and contentment in a long time 🤗 I really hope it works for you too 🤞

Very best wishes

[Kipsy in reply to Polaris]

Polaris thank you very much. Really appreciate the link.

[Coastwalker in reply to Polaris]

Thank Q Polaris, have just ordered some. 👍⭐️

[Gimi]

I take desicated beef thyroid instead of the synthroid prescribed and feel much better.

[Polaris]

Thank you for for this feedback Gimi - good to know you feel feel much better 🤗

[Coastwalker]

Yes definitely B12 should be looked into for Alzheimer's Shaws.

(as well as for Parkinson’s, Supra Nuclear Palsy, DementIas, Motor Neurone, MS and anything else linked neurological too.)

One lady whose father had Parkinson’s told me that her fathers B12 was low in range, but Dr said it was OK for someone who had Parkinson’s ? 🙄

Another’s lady’s father had Supra Nuclear Palsy, she later came back to me a month later and thanked me for telling her to get her fathers B12 checked as he did have a B12 problem. 🙄

Surely B12 bloods should be one of the first things to be checked for nerve or neurological problems. ?

My late Father had Supra Nuclear Palsy, Parkinson’s and Parkinson’s Dementia a triple whammy his Specialist neuro Doctor coined it, but I believe looking back he had an underlying B12 deficiency going on as his symptoms were very much identical to those of that well known Paediatrician Doctor who’s B12 deficiency was over looked, plus my Father worked as a radio technician operator with three tall radio masts on his works building.

Dad was always banging on about how dangerous high radio/radiation waves and microwaves were. He would never buy a mobile phone.

With all the new 5G Cell phone towers soon to be installed, I’m wondering if there could be a lot more cases of B12 deficiency springing up ?

[Marz in reply to Coastwalker]

5G is scary ...

[Lesleyg13 in reply to Coastwalker]

As I mentioned above, my husband has Parkinson's. He developed pins and needles and numbness in his fingertips. I suspected B12 deficiency, from that and several other symptoms, and got GP to test.

Result was low in range and GP was perfectly happy with that, even though I had found published research stating long term treatment with levodopa can cause deficiencies in B12 and folate, and that these deficiencies are commonly found in people with Parkinson's. Low B12 is also believed to be linked to a faster decline in Parkinson's.

I persisted and luckily we saw a great locum who had recently done a relevant course and knew more about it.

[shaws Administrator in reply to Lesleyg13]

You do wonder why GPs don't seem to recognise any symptons of common autoimmune diseases at all in the patient before them and, I think, doctors should automatically check vitamins/minerals as well . If vitamins/minerals are low, especially in older people and even children they could develop other diseases.

I'm glad you found a good locum who was knowledgeable.

[Lesleyg13 in reply to shaws]

Yes I totally agree, nutrient testing would save the NHS a lot of money in the long run, as would diagnosing hypothyroidism at an earlier stage.

Like many others on here I was sent for a lot of unnecessary and expensive tests, with repeated GP visits, which could all have been avoided had I been properly diagnosed and cheaply treated. It just doesn't make sense.

[Coastwalker in reply to Lesleyg13]

So pleased your husband was given the B12 shots Lesleyg13.

There needs to be more awareness of low or deficient vitamin B12 for those with Parkinson’s and other neurological conditions or those suspected of them. Plus B12 checked before given any other medications.

[Lesleyg13 in reply to Coastwalker]

Just a shame the NHS won't give them frequently enough to stop his symptoms returning. He needs injections every few weeks so I have to buy them from abroad, as I do with NDT for myself.

[Coastwalker in reply to Lesleyg13]

They soon dish out their prescription pills, but those needing vitamin B12 shots have to beg for them. I too use to buy my NDT abroad, such a stupid game for patients.

[Coastwalker in reply to Lesleyg13]

Just a thought, Has your husband also been checked for vitamin D ?

[Lesleyg13 in reply to Coastwalker]

Yes thanks, his level is optimal, but I've always supplemented him anyway.

[Coastwalker in reply to Lesleyg13]

👍⭐️ 😀Good to hear Lesleyg13.

[shaws Administrator in reply to Coastwalker]

Even those who have Pernicious Anaemia should be given more frequent B12 injections as many have symptoms returning before jab is due.

[Coastwalker]

Very worrying Marz, all tied in to ‘solar’ management (apparently) as you might already know ? 😢

[Marz in reply to Coastwalker]

No I do not know about solar management. Send me a PM when you have time !