Overdosing on NDT!: I just got my bloods back... - Thyroid UK

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Overdosing on NDT!

moowens profile image
22 Replies

I just got my bloods back from GP, after going to her with anxiety/stress/weight loss (I lost both parents in the last 12 months and have a 6 month old who wont sleep (I continue to breastfeed)!).

GP is really great - she brought me in for an appointment to discuss results as she knows I am on NDT. She explained that based on my results (t4- 27.8, tsh 0.01, t3 18.8) she should be prescribing something to lower my levels, but will work with me to try and get things stabilised.

So my question is... what's the best way to reduce NDT?? I am currently on 3 grains, twice a day... I know this seems a lot, but during pregnancy and after giving birth I couldn't get things regulated, all my symptoms had returned (I was taking 4 grains sublingually and happily before pregnancy) so I upped dose to 6 a day (not taking sublingually anymore).

I had assumed that physical feelings of stress were as a result of grief and no sleep... turns out I may have been putting myself under more physical strain by over medicating. I'm afraid to adjust the amount now, before getting some advice!

Thanks in advance!

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moowens
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moowens profile image
moowens

BTW I had overdosed once before and my heart rate went bananas. I always monitor now and it is currently steady as a rock, so I assumed all was ok with my dosage. Blood pressure is sound as well. Liver profile a bit high, GP thinks could be due to supplements - I take 2000mg vit c, magnesium, multi vit and mineral, glucosamine, ashwaghanda, tulsi, probiotic, fenugreek (for breast milk supply).

Clutter profile image
Clutter

Moowens,

Did you take NDT before your blood test?

moowens profile image
moowens in reply to Clutter

Gosh, I cant really remember. My appointment was at 12pm, I was probably only up at 10.30am, having been up all night with baby. So I may have gone on to GP before taking NDT. I'm not very good at taking my doses at the same time everyday!!! But I may well have taking it... not very helpful I know!!!

Clutter profile image
Clutter in reply to moowens

Moowens,

If you took NDT before the blood draw you may not be over medicated or as over medicated as you appear to be because the T3 in NDT peaks in the blood for up to six hours.

If you left 12 hours or more between last dose and blood draw you are very over medicated because FT3 is 3 x over range.

moowens profile image
moowens in reply to Clutter

I will bear this in mind for next bloods which will be in a couple of weeks... can you advise whether I should stay on current dose or reduce?

Clutter profile image
Clutter in reply to moowens

Moowens,

Not really. It's hard to say whether you've a false high FT3 after ingesting T3 in NDT without knowing when your last dose was. If you are retesting in a couple of weeks it won't hurt to wait for those results before making any adjustments.

moowens profile image
moowens in reply to Clutter

Ok, thanks! So, just to clarify, I need to leave at least 12 hours between a dose of NDT and getting bloods done?

Clutter profile image
Clutter in reply to moowens

Moowens,

12 hours is sufficient.

humanbean profile image
humanbean

Do babies get thyroid hormones coming through in breast milk when mothers have very high levels of thyroid hormones?

If they do (and I honestly don't know if it happens, I'm just speculating) then it could be affecting your baby, and may be making it hard for him/her to sleep. I did read this evening that hypothyroid mothers have extremely low levels of thyroid hormones coming through in breast milk. But your thyroid hormones aren't at hypothyroid levels.

I've been very mildly overdosed on occasion, and I just found it exhausting.

I'm reluctant to suggest how much you should reduce dose by. I feel my post has too many ifs, buts and maybes in it, as well as barrow loads of ignorance.

moowens profile image
moowens in reply to humanbean

I had wondered about the breast milk as well to be honest... conflicting info online re same...

Glynisrose profile image
Glynisrose

Why reduce? How do you feel? Don't reduce because you think you can.

moowens profile image
moowens in reply to Glynisrose

I went to GP because I feel really on edge... so don't know if its stress or NDT related ???

Glynisrose profile image
Glynisrose in reply to moowens

Its thyroid related.

Glynisrose profile image
Glynisrose

Babies DON'T get thyroid hormone through mothers milk.

Loza73 profile image
Loza73

Thyroid hormone replacement, when provided in proper dosage level, crosses into breast milk in only minute quantities, and has no adverse effect on the baby.

That said, this holds true only if the blood hormone levels remain in the normal range. If too much thyroid hormone is being taken and levels become hyperthyroid, then thyroid hormone can pass into the breastmilk. For this reason, if you are a nursing mother on thyroid hormone, you must take medication exactly as prescribed by a physician. The period following delivery is one where thyroid levels can fluctuate, so frequent testing is very important, because your dosage and TSH level may be just right three months post-partum, but three months later, the same dosage could be making you hyperthyroid. So, plan to get blood levels drawn frequently (i.e., every three months) as long as you are nursing your baby

moowens profile image
moowens in reply to Loza73

Ok, this makes sense... GP has offered to organise bloods on a regular basis, so will certainly do that! Can you advise what I should do about my dose in the meantime??

moowens profile image
moowens

I do think I need to reduce my dose. Was thinking half a grain a week to see how I get on... is this too much too fast?

Loza73 profile image
Loza73 in reply to moowens

Hi @Moowens I agree with @clutter, it wouldn't hurt to wait before doing anything.

Marymary7 profile image
Marymary7

If you keep a track of your temperature first thing in armpit before you get up, that should give you an idea. Bowels etc all the hyper symptoms?

moowens profile image
moowens in reply to Marymary7

Thanks, I had thought that taking temp might guide me. So what range would suggest hyper?

moowens profile image
moowens

Was massaging him with chamomile oil, will try the homeopathic approach, thanks

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