Hello everyone, firstly I just wanted to say what a relief it is to find a support network and so much first hand experience. I was diagnosed in October 2016 with Hashimotos and have been trying to work out how to get back to normal ever since.
I was started on a dose of 50mg levothyroxine and had TSH level of 15 (I don't remember what my T3 and T4 levels were but I know they were wrong). I had awful brain fog and was so exhausted I couldn't work. I've improved massively since then and was told to have a check up 3 months later, which was last week.
My new results are T3 and T4 in normal levels (though I don't know what as I the Doc didn't share that info) but TSH is 8.9. This is very disappointing as my husband and I would love to start trying for a baby but have been advised not to do this until TSH is under 2. My dose has been upped to 75mg a day and this will be reviewed in 6 weeks. I currently feel awful (though not as bad as I was) - really tired, struggling to concentrate and oddly teary/emotional. I'm hoping that this is will settle after I get used to the new dose.
There's so much new information to get my head around and I'm wondering the best direction to go in, if anyone is able to advise on any of the below I would be extremely grateful.
1. From reading other posts it seems best that I request a copy of all my tests and keep a copy myself, is this easy to do? I'm guessing I just request from the Dr's receptionist?
2. I've read that there is a link between Hashimotos and gluten, have people found this generally to be true? I'm not sure I can face gluten free entirely but was thinking of reducing my intake to see if that helps.
3. Although the GPs I see are generally good and seem clued up on thyroid issues (but what would I know?) I was wondering about trying to get a referral to an endocrinologist to discuss it all thoroughly and check I'm definitely managing this all in the right way. Has anyone done this and if so was it useful?
Thanks all and apologies for all the questions/ranting. It just all feels a bit overwhelming.