Hashimotos and pregnancy guidelines

Hi again.

I am now 8 weeks pregnant and have raised my thyroxine from 50mcg to 75mcg, my tsh has come down from 2.2 to 1.3 on my new dose.

I was supposed to be seeing an endocrinologist, but due to a mix up ended up seeing an obstetrician instead who spoke with the endocrinologist on the phone, who basically said just to remain on 75mcg and have my tsh tested at 28 weeks.

No further advice given and told antibodies aren't relevant (not really want I wanted to hear, as my history of miscarriage and preterm births I was hoping were due to the then undiagnosed hashimotos )

They also said that it was only the tsh they wanted checking.

What are your thoughts on this?

I'll be seeing my midwife to book in soon, and will mention my hashimotos to her, and could possibly request another referral to a different endocrinologist?

7 Replies

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  • Congratulations, Chasing-Rainbows.

    The NICE recommendations have never commented on antibodies. Recommendation was that TSH should be in the low-normal 0.4-2.0 range with FT4 in the upper range.

  • Go to hypothyroidmom.con & buy her pregnancy book.

  • I ordered it on kindle yesterday, says I should have levels tested every 4 weeks until halfway through, and at least once between 26-32 weeks.

    Hopefully midwife will check my levels at each appointment.

    Just a but disappointed that the endocrinologist didn't even see me or go through my history, was quite dismissive.

  • It shouldn't be the case, but that it is quite typical I'm afraid. You have to be as knowledgeable as poss, as no one else has a clue. (Especially the midwife.) Best case, you will tell them what you need & then they will go along with it. Worst case, they will refuse & you will have to pay for private blood tests etc.

    It's usually your GP or your consultant at the hospital who will do your blood tests, rather than the midwife. Just make sure that 1 of them is doing it & that aren't both assuming that the other is.

    You will have to lead your own care.

    Good luck!

  • Will do, am feeling quite determined, thanks :)

  • I had a friend recently go through a 'high risk' pregnancy, in other words consultant led, because she has had several injuries to her hips and pelvis.

    The consultant was next to useless, taking no interest, and several times adding to her birth plan that she should give birth in a posture that could have caused permanent damage.

    So I think your experience may be the norm :(

  • It does seem so, I'm learning I have to be my own advocate, so I'm very grateful for this site here. X

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