I'm relatively new on here and have just been tested and received confirmation of having the DI02 polymorphism from 1 parent. So, in summary I am converting some T4 to T3 but in all probability will never feel fully well unless I supplement with some additional T3.
I've been to see a private endo who has agreed that a trial of T3 is worth trying, however due to BMA restrictions he can only prescribe T3 at the 'natural T4:T3 ratio of 14:1 and only then if this does not leave me "over suppressed" on TSH (i.e. Outside of the 0.3 lower range they stipulate). I picked up the undertone that this wouldn't be his preference but that if if he doesn't adhere to this he will find himself in hot water.
This means that based on my current meds of 125mcg Thyroxine he can only suggest adding in 5mcg T3 and dropping to 75mcg and seeing how I get on. He said we'll re-test in 6 weeks and if I then feel undertreated and my TSH is not oversupressed he can then justify adding more Thyroxine back in.
So, armed with my shiny private prescription I've called a few pharmacies this morning onlyby discover that 5mcg is a special item and that for the 50 days he's prescribed that will be £292 please!!!!!
So, two steps forward and one step back and I'm fairly certain that the GP who is covering maternity for my lovely normal GP is not going to prescribe me T3 on the NHS (our last conversation ended in him suggesting it might be time for me to consider whether I have a mental health issue causing my ongoing symptoms)
If anyone can pm me with any suggestions of where I might be able to order T3 online (preferably 5mcg but if not 10 and I can cut in half) I would be really grateful.
Alternatively any other ideas/solutions gratefully accepted!
My last labs: