T3 Eu Supplier: Hello Please can someone PM me a... - Thyroid UK

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T3 Eu Supplier

Peaceluvva profile image
13 Replies

Hello

Please can someone PM me a supplier for Liothyronine.

Many thanks.

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Peaceluvva
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13 Replies
Clutter profile image
Clutter

Welcome to the forum, Peaceluvva.

Members are more likely to share sources if you give a little background information about your hypothyroid illness. Have you recent thyroid results and ranges you can share and are you currently taking Levothyroxine?

Peaceluvva profile image
Peaceluvva in reply toClutter

Hello Clutter

I have a long history of being underactive. Became uncomfortable with self medicating and overcorrecting on NDT. So I went cold turkey on synthetic T4 150 mcg for 8 weeks and got some tests. TSH 0.02 T4 19 T3 3.1 - endo said go on 20 mcg Liothyronine split into 2 doses and drop T4 to 50 Mcg.

Clutter profile image
Clutter in reply toPeaceluvva

Peaceluvva,

Most non-UK T3 is 25mcg. Your FT3 is so low I think 25mcg will be fine. Otherwise 18.75mcg (3/4 of a 25mcg tablet) can be achieved with a pillcutter available at high street pharmacies.

20mcg T3 is equivalent to 60mcg T4. I think your endo has reduced T4 too drastically. I would reduce T4 to 100mcg + 20-25mcg T3.

__________________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical advice from your own doctor. Please check with your personal physician before applying any of these suggestions.

Peaceluvva profile image
Peaceluvva in reply toClutter

Hi Clutter

I think his reasoning is to make my TSH more detectable. I have not had surgery or anything...so TSH at around 0.5 should be more healthy and avoid RT3 rising.

Thoughts?

Clutter profile image
Clutter in reply toPeaceluvva

Peaceluvva,

He's undoubtedly slashing the T4 dose for that reason because FT4 19 isn't likely to be over range. TSH 0.5 is less suppressed than 0.02 but I don't see why that is more healthy? If you didn't have high rT3 on 150mcg T4 you won't have high rT3 on 100mcg + 20mcg T3.

Peaceluvva profile image
Peaceluvva in reply toClutter

Hi Clutter

I believe that too high a level of FT4 (top end of ref range was 22) is not good for women as it suppresses oestrogen levels. I am 47 now and overcorrecting resulted in hot flushes at age 43. Women should be very careful about monitoring signs of reduced oestrogen for multiple reasons.

Something to bear in mind also is that we need to maintain some thyroid function of our own and stay within ranges. There is no need to oversuppress surely unless you absolutely have to?

Ideally I would like to keep my TSH between 0.5 and 1 and my FT3 at top of range.

My issues are caused my the use of metformin for PCOS. Metformin is a great drug but it affects thyroid function by suppressing TSH.

Clutter profile image
Clutter in reply toPeaceluvva

Peaceluvva,

I don't agree that TSH needs to be kept within range. My TSH is supposed to be suppressed <0.1 to reduce the chances of thyCa recurrence.

Many patients on Levothyroxine need FT4 high in range, sometimes over range, to have good levels of FT3.

If the Metformin is suppressing TSH then surely TSH should be ignored and dosing guided by FT4 and FT3?

Peaceluvva profile image
Peaceluvva in reply toClutter

You would think so wouldn't you? But they leave you to it. GPs refuse to test T3. I had to sort all this out myself.

RedApple profile image
RedAppleAdministrator

Peaceluvva,

Do you have a prescription for liothyronine? And for what reason do you specifically ask for an EU supplier?

Peaceluvva profile image
Peaceluvva in reply toRedApple

Hello RedApple

I have been reccommended liothyronine by an endocrinologist who advised my GP to prescribe it. GP is not happy and says its an AMBER drug and costs 263 a month! I will have to get it myself like all these other people. I have high T4 and low T3 so it seems I am not converting my T4.

RedApple profile image
RedAppleAdministrator in reply toPeaceluvva

Thanks for clarification. If cost is your GP's only reason for not prescribing, will s/he still monitor you if you buy your own? It's the least they can do isn't it!

Peaceluvva profile image
Peaceluvva in reply toRedApple

I imagine he will be fine to monitor me. He is a good guy really.

The issue needs to be addressed at a much higher level and I am happy to get involved in that.

It's incredible that the NHS is failing so many.

Peaceluvva profile image
Peaceluvva in reply toRedApple

Apols I didn't explain why I wanted an EU supplier. I have been buying Nature Thyroid from USA and paying tax on it...just trying to avoid that I suppose. I'm actually left with about 250 Nature Thyroid tabs but am determined to move to T3.

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