40 years ago had a subtotal thyroidectomy (cancer) and have spent all that time trying to find the best L thyroxine does which typically is 100 mcg/day. When I started then no internet, no warnings about taking it with iron (which I did) or with soy milk (which I did) and I stored the tables on a nice sunny ledge in my kitchen. The 70s and 80s were just a constant fatigue.
More recently, frustrated with always feeling HYPO cause different doctors said "but Loy, your TSH is within range", that's not the problem you are simply ageing and that is why you always feel cold, fatigued, brittle hair, lifeless skin etc..you know the symptoms as well as I do.
Went to see an integrative doctor who claimed to know about thyroid cause I suspected T3, or lack of, was the culprit. After extensive blood tests, apparently so.
Before I went to see him my bloods were: TSH 4.78 (Ref 0.5-6.0), FT4 18.8 (Ref 11.0-2201) FT3 4.2 (Ref 3.2-6.4).
When my bloods came back he told me that my FT3 was really low as was my TSH ( i don't have those numbers yet). So, given I assumed that he specialised in thyroid stuff, I assumed he knew what he was doing. I went from 100 mcg T4 daily plus another 25 T4 mcg daily and 20 mcg T3 nails (which is 20x4)=80 mcg T4. In other words, he more than doubled my daily T4 dose.
Needless to say I wound up in hospital 3 weeks later with serious headaches and high blood pressure of 190/110.
The headaches are more like pressure in my head like intracranial hypertension and I am now on regular blood pressure tables.
Subsequent labs: TSH 0.42 (Ref 0.5-6.0), FT4 15.9 (11.0-22.0) FT3 5.0 (3.2-6.4) Yep, TSH really sucks.
So, a couple of things if I could:
1. Has anyone else endured a similar scenario and how was it resolved for you?
2. Anyone any info on the relationship between excessive L thyroxine and T3 and intracranial hypertension? And how that was resolved?
3. Relationship between high blood pressure and thyroxine if any and resolution.
The problem is that when I took the T3, for the first time in my thyroxine life I had a glimpse of what my body could be rather than being hypo all of the time. It was that good before it went pear shaped.